Deep Vein Thrombosis (DVT) Support Group
Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.
Hi everyone,
I was told almost two years ago that I needed a hip replacement. I have decided to hold off on that as my neighbors told
me that surgery should be a last resort. Having said that I ran into someone today who said that her mother was
helped greatly by taking a joint supplement. When I was on Warfarin that was not an option. Does anyone take
the combo glucosamine, chondroitin, msm. I researched the first two and there is no interaction with Xarelto but
when I added MSM it changed to "serious" interaction.
Any info would be greatly appreciated. I have also sent my doctor an email. Hopefully she will get back to me in a few
days but generally speaking the people here have more info than my own doctor.
Thanks
Linda
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Thanks Rachelle
Linda
Yeah I get it. I used to be so much more in tune with the potential interactions while on warfarin. Since being on xarelto, I admit I’m less vigilant about it. And I’m still upright and ticking!
Glad you got some answers!
Rachelle
There's better advice here on the board!
Warfarin dosing for me was such a headache, just totally stressed me out. It was in 2007 when I had my PEs and I remember getting out the hospital, getting my INR checked a few days later in the cardiologists office and it was in range, so the nurse insisted I didn't need to come back for another 30 days. I even said, are you sure because the doctor said I may need to check more frequently initially. She ignored me and I didn't know enough then to push back. Big mistake because by the time I went back in, my INR was like 1.2 or something ridiculous. Took like 5 1/2 months to get it above 2 and it just left me feeling so raw and stressed out. I then had a new doctor, got my 2nd DVT after going off warfarin, so back on it then and the same situation. I feel like they were so afraid to increase my dose and over correct. I switched doctors again for this reason.
Finally, my new doctor (who is still my doctor) sort of just instinctively knew how to increase the dosage to give me a bump, and then dial into a sweet spot, which was 15mgs a day, I was in range then and steady for a couple of years under his management. until we moved on to Xarelto. I feel like Xarelto is a godsend honestly. I mean I was ok with checking my INR. I just got sick of having to worry about it. I've been on Xarelto for a few years now and it's been great.
I remember literally telling my current doctor at my first visit with him that all I ask is that he doesn't kill me. I was only half joking.
Anyway, glad you're still upright and ticking too!
Looks like we've both suffered from ignorant doctors and nurses. I say ignorant because they most likely open up a manual to see what "protocol" to use in a situation that they have not seen before. Like you, this has happened to me over the past 20 years since my first DVT. I have moved several times since my first DVT but have found problems wherever I go whether it be the overworked doctor or the office staff. I had a problem a few years ago with my BP. Both my grandmother and great grandmothers died to massive strokes due to very high BP, most likely because in those days there was no treatment options other than giving up salt. So, my BP went up and I freaked out. They put me on meds but it was not until I told the nurse to up the dosage that my BP was normal. I had to literally beg them to do it. I am on two BP meds yet my BP went up again a few months ago. Doctor said to try losing weight which I did and now my BP is not quite normal like it was but much better. I have avoided yet a third med. Yay for me. I was told I needed a hip replacement back in FEB 2020. I don't trust my current doctor to join forces with an orthopedic surgeon to get it right with the blood thinner and having to go off it for surgery so I am doing all that I can to avoid more pain and discomfort. I live in a small town on the coast of MA but will most likely see a surgeon at MASS GEN who is tops in his field for hip replacement surgery. I lost 11 pounds and the pain in my vein in my left leg has gone away completely. That's a big deal because the pain just stopped me in my tracks and now it's gone. Good incentive to keep up the weight loss which is a full time job in itself.
Oh well. Thanks for listening
Linda