Deep Vein Thrombosis (DVT) Support Group

Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.

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/ Deep Vein Thrombosis (DVT) Support Group

Leg Pain Part 2

rytheguy71
rytheguy71
Would it be normal or common to start having leg pains from the clotting 13 months after the initial incident? I want to see if anyone else out there has had delayed onset of pain from the clotting. With me, I initially had what seemed like a pulled muscle- a real sharp pronounced "event", and then after that, although my leg became swollen, there really wasn't much pain other than the uncomfortable feeling caused by the swelling. Recently, since I have stopped the Coumadin, I had cramps in my left non-dvt leg on last Friday night, and now today, I am having some pain in my right calf, sporadically when walking, and also in the heel of my right foot. My vein surgeon said that I might have problems down the road with my legs due to the size of my clots, but I really wasn't feeling much change up until now

I am headed to the hematologist for my 1 month follow up in a couple hours and I will pose this question, but I wanted to see if I can get some perspective from some of us that have been through this before.
rmb
rmb
I responded to your same question posed on the PE group. Totally possible to have some discomfort, even now, in your DVT leg. But your doc will help you sort it out.
rytheguy71
rytheguy71
So I saw the hematologist today, and they are running the d dimer, protein c and protein s that they ran when I first went into the hospital. She said that the c and s could have presented as a false reading while the active clotting was oxcurring. She also wants me to go get a doppler ultrasound on both legs, independent of what the d dimer shows. She said that due to the cramping it is best to get it assessed because even if the d dimer is low, the only real way to determine if there is a new clot would be through the imaging "
Toddo
Toddo
Good to get it checked out. Over 7 years, I had 3 clots, went on coumadin, and then went off. In between, I noticed that calf pain showed up later, during and after I was therapeutic. Only one of the times did the pain proceed the clot, so it's always hard to tell. Nevertheless, I would up chasing down various unrelated leg pain, just to ease the anxiety, which was frustrating but worth it to me.

I'm glad your hemo is following up. Good luck!
rytheguy71
rytheguy71
Thanks Toddo, I appreciate everyone who replies with their experiences so I can get a base of knowledge about what is "Normal" (whatever that is). I do feel like I have a pretty thourough hematologist...also, love your avatar
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