Deep Vein Thrombosis (DVT) Support Group
Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.
Toddo
Hi, everyone. I'm a 41 year old male and I developed a DVT a day after a flight from the East to the west coast. It became a pulmonary embolism a week later and I was hospitalized for a week. I was on lovenox & now coumadin. My doctor ran every test he could think of but could find no genetic factors. I have none of the risk factor (in decent shape -exercise every day, etc.). After every test came back negative, my doctor declared "you just got unlucky on that flight and developed the DVT. That's it." Aside from feeling lucky that the PE wasn't worse, I'm wondering about that diagnosis. My family is pushing me to see a hematologist and I'm planning on it. Meanwhile, does anyone have any opinion on this diagnosis and how common it is for a person like me (at my age) to develop a DVT?
Many thanks for any thoughts.
Todd
Many thanks for any thoughts.
Todd
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I was 47 and doing lots of mountain biking so yes in fairly good shape, when I was diagnosed (july 07) with a large DVT in my right leg. It was from my calf and had gotten stuck in my pelvis, lucky for me, it was on it's way to my lungs.
Idiopathic means that they(medical community) have no reason for a blood clot to have form. I also tested negatif for all of the genetics factors.
The more you search various DVT/PE forums you will find out that it is very common at any age to be "Idiopathic".
BTW, welcome to DS/DVT, probably the best forum where the membership is very knowledgable about DVT/PE being that none of us are doctors we are just DVT/PE SURVIVORS that have educated ourself, because we care...
There are LOTS of people who get clots after a long flight. If you were dehydrated and sat still for hours on end, this is probably the cause.
I would still follow up with a hematologist to make sure every test that needed to done was in fact done. Keep in mind the older someone is, the higher risk they are for clotting.
If it's all in the clear, take an aspirin as Joeyrose said, drink plenty of water, and consider yourself (somewhat) lucky!
A 4 four year study was concluded right after I was diagnosed which prooved this.
That is what my hemaetologist told me, which is why I'm an anticoagulant long term user.
So, while its certainly not unusual for anyone to get a DVT while flying, I would definitely see the Hematologist. Mine made a good point that you don't just get tested to figure out why you have the clot. Its important to know if its some sort of specific autoimmune or genetic issue because advances in treatment are happening all the time, to the point where some day they can treat and / or cure the actual disorder vs just using warfarin as a band aid.
Man, having a PE is the scariest thing. There's also a PE forum out here that has good info. I'm happy that you made it.
It is the strangest thing......my PE came out of nowhere. I was on warfarin for 6 months then off and 3 months later, developed a clot from my ankle to the middle of my thigh. I am in good shape, 56 years old and tested negative for all genetic factors. My hematologist and my PC doc tell me that I do have a genetic clotting disorder, it just hasn't been discovered yet. They are finding 10-12 new ones each year. Go Figure.
Anyway, I am planning a trip to Italy in July. Trip of a lifetime and I am scared to go. I haven't talked to my doctor yet and my PT/INR has been running low...1.5.
Oh Well, take care everyone!
Nina 4