Hi Megan,
I'm sorry about your situation but don't panic. I know it's scary, it's just another thing that happens with cf. My daughter had to stay in the hospital for 2 months before she could come home just so the docs could get her healthy enough to bring home. In that 2 months, she had a lung biopsy and required oxygen until she was 7 months old. She got MRSA in her lungs when she was in the hospital. We give her Tobi every other 28 days, plus her regular treatments every day, and every once in a while she'll have to take an extra antibiotic for several weeks. There are antibiotics that help, it just takes a little longer. I know you're probably over whelmed with all this, but as long as you stay as healthy as possible, it won't bother you so bad. You are going to have your good and bad days but you seem like a very strong person and with lots of support, you CAN do this. Ask your health care provider about the different types of antibiotics to help MRSA and see what's best for you. Yeah, it's another medication to take, I'm just glad there is something to help. Good luck and keep us posted on how you're doing.

My daughter's cultures just came back positive for MRSA. I have been told however that with a special recipe of anti-biotics it will go away. She has her bronchoscopy, CT scan of the lungs and sinuses on Wednesday. When the cultures come back she will be admitted for a tune up. I will let you know how things go...hang in there. It always seem that stuff sounds much worse when you first hear about them. Once things simmer down again it won't seem so scary I hope!!!

My daughter is 4 and cultured MRSA recently. She started running a fever one morning, then by the next day she was fine. She just had a rough cough that would not go away. A week after her sputum culture, I called her docs and they said that she had cultured MRSA. They put her in the hospital for a week and we did at home IV's of Zyvox ,or linezolid. I was very worried because there is not much info on MRSA and CFers. All that they really know is that sometimes it goes away, sometimes it does not. It can colonize in the lungs and not cause any problems, but if an infection is present, which is different from just colonization, you get sick. Lilli had an infection. Her doctors were conducting a study for the foundation so they put Lilli in it, too. A week after she was done with IV's, we went back to the hospital to do x-rays, bloodwork, and sputum tests. Her tests all came back clear. No MRSA. If it is caught early and is treated aggressively, there's a large chance that it will totally go away. Usually, though, it stays but does not cause a lot of problems. When the colonization turns into an infection, it is treated and it goes back into incubation.
~hugsnkisses

It very difficult to treat I had it for six months and was on nearly everything

Hi megan, I was on vancomicen and zyvox it cost the government over 20,000euros in medicine to treat it. It can be serious and even fatal espically with an existing lung condition, so act quick and ask the questions. Make sure your tested 3 times at the end for the all clear. I nearly died from it.

I hope that you can manage to get rid of this. MRSA is esily picked up in hospitals along with other 'superbugs'. Well it is here in the UK where hospital cleanliness is sometimes appalling. I recently went into hospital and could see that my room was not clean. Even though I felt ill, I went to the supermarket to get antibacterial wipes and cleaned the room from top to bottom. I payed extra attention to light switches and door handles etc. I shouldn't have had to do this but it's the only way to protect myself. Take care.

Greetings and Salutations. My name is Steve. I am 39 years old and was just diagnosed Friday as having MRSA in my lungs. I am taking Zyvox orally for 14 days.

My FEV1 was down from 70% to 52%, and needless to say, I am fatigued and tired a lot. Are any of you going to work/school while being treated for MRSA? I regularly work an 80% schedule and I'm on FMLA (I'm in the USA) for 20% of the week. For CF exacerbations with IV antibiotics, I definitely stay home at least one week and then work half days for the rest of the treatment.

I have a great team of doctors, nurse practitioners, etc. but I can't get a straight answer out of them about time off from work. Any comments you have are appreciated.

Good luck to all of you, and have a wonderful day.

-Steve, 39 y.o. person with CF, CF related diabetes, and now, MRSA.

Can anyone comment on MRSA transmition? My daughter is dating a boy with CF. He was in the hospital for the 2 weeks being traeted for pneumonia with MRSA. They are close and are frequently kissing. Does not sound like a good idea to me.

Any comments? Advice?

Hi my name is shannon. I am 20 yrs old. I do have MRSA. MRSA stands for multi resistand sudamonus. its bug most of us get. its where u have trouble or do not respond to antbiotics. unfortunately it does not go away in less u have a transplant. depending on ure condition or the strain of bugs in ure lungs it can b controled!! :) the only advice i can give u is that do NOT wait until u are really sick to go and get treated. it will b harder for the antibiotics to treat the ger mor bugs growing in ure chest. hopw i helped!!

I am almost 40 and have CF.

I just wanted to post a comment to Shannon - MRSA stands for Methicillin Resistant Staph Aureus, not "multi resistand sudamonus".

Pseudomonas is a very different bacteria than Staph.

It's important not to post inaccurate information when dealing with medical conditions.

I have cultured MRSA in my lungs since October, and been treated with Doxycycline four times now (once in the hospital). Usually two to three weeks helps me feel better. MRSA for me starts with a fever (I never get fevers with Pseudomonas), extreme fatigue, increased cough and sputum, chest discomfort, and a general ill feeling.

Good luck to everyone fighting the battle. CF is an ugly disease.

PS - according to a 2005 study of CF Patients, about 17% self-reported having colonized MRSA. I don't know how much that has changed since then.