Cystic Fibrosis Support Group

Cystic fibrosis, (CF) is a common hereditary human disease which affects many different parts of the body, including the lungs, pancreas, gastrointestinal tract, reproductive organs, and sinuses. This support group is dedicated to those coping with cystic fibrosis. Find support, meet others who face the same challenges, ask questions, and share your experience.

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  •   ooking for a CF doctor in t I'm looking for a CF doctor in the Southwest Florida area. I am spending a lot of time in Naples during the winter and I need to find a doctor in the area. Is anyone in this group from SWFL?  
  • bbaskininventor

    Trying to help

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    Hi everyone,My dad passed away from Cystic Fibrosis in his 40's, when I was 13 years old. I want to lend my ear and heart to anyone who has had some similar experience and wants to chat about it.As an inventor and engineer, I am always researching new technologies and looking for applications, and I think I have a solution for CF patients that can make day-to-day more enjoyable or easier to...
  • TrishaChiro

    Anyone there...?

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    Hi everyone, I joined a while ago and haven't done anything with it. Is this an active group, at all? Is there any activity in here that is more like chatting and keeping in touch that way or is it all just posts and comments? Maybe someone knows something else more suitable for that sort of thing they could recommend....I have CF and would just want to talk to someone about it, in general. To...
  • deleted_user

    CF Spouse Support group

    Does anyone know of a group for spouses of Cf adults. My husband is 34 and we have twins. Its scary and things seem to be going downhill.Anyone else out there with support, guidance?
  • deleted_user

    Would really appreciate advice

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    Hi EveryoneMy name is Emma. I'm a postgraduate student studying Scriptwriting.I am planning on writing a drama about a couple in their late teens having to come to terms with the male being diagnosed with CF later than normal.I'd therefore love to hear from people who have experienced this themselves or know people that have.i'd like to make the script as true to real life as possible.I'd like to...
  • Whatsauname

    What is CRMS??

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    I am confused, I thought a CF patient carried two genes w/the CF factors.My grandson has only 1 CF gene factor (strictly my terminology).Does this mean that he has CF?. He gets med care at a major CF center.I am trying to understand all of this..Pls advise..
  • deleted_user

    When the Going Gets Rough

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    Hey there, My name is Waydon and I'm a 22 yr. old college student with a full-time career. I was diagnosed with CF at birth and up until about two-three years ago I was considered to have a mild case. That was before I started college and moved away from home. Never being able to hold onto any form of insurance for very long I simply got by on the charity of a team of doctors I've known since...
  • I'm a 33 year old male. In 2006 I had an x-ray for a nasty cold, I was 25 or so at the time. The findings: Heart is normal size. Lungs are hyperinflated. Aorta and pulmonary vascularity are unremarkable. There is not acute lung or infiltrate or congestive heat failure. Impression: Hyperinflated Lungs, no acute cardiopulmonary disease.In 2009, i had bronchitis and doctor only said they found it on...
  • Megan4

    "Potential resource/outlet"????

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    Hey I was just wondering if anyone has contacted the "potential resources/outlet" post By: SchlesATL on the Home Page topics? Any Luck? Is it legit?
  • amandamaillard

    Hello To All

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    I have been on here before but can't seem to access my old account so here i finally am again. What's new and who wants to chat?
  • jersey88AD

    Should I be tested for CF

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    My son was diagnosed with hirschsprung disease which can results sporadically or from CTFR gene. His mother who is hispanic had negative test for CF. My son also had newborn screening and everything was fine. However we did not do sweat test. He does have allergies, frequent ear infections which I read is not typical of CF.However myself, 32 male with no symptoms. I had pneumonia when I was 15...
  • deleted_user

    spouse of cf'er

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    Hello. I am just reaching out in the hopes that maybe there are others in a similar position who may want to talk from time to time, offer each other support, a place to vent, share helpful info and so on. I have been with my husband, who is approaching his 40th bday... for 12 yrs. We have been fortunate that for most of his life, he has been relatively healthy. but these last few years, it is...
  • deleted_user

    Tough times

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    Hi Everyone, I found this site tonight while looking for CF support groups. My son, nearly two years old now, was diagnosed with CF shortly after birth. We have been blessed so far with good health, his problem has been with his weight. At almost two years, he is still in the second percentile for his age in height and weight. I have been looking for a support group for a while now, and while i...
  • deleted_user

    sinus issues

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    Our 13 year old has horrible has ongoing sinus infections. She has had sinus surgery and is now on IV antibiotics for the most recent sinus infection. Does anyone have any suggestions on chronic sinus treatment? What has and has not worked? Thank you!!!
  • deleted_user

    Pulmonary MRSA a problem for CFers?

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    Is pulmonary MRSA a significant problem for CFers? Share your thoughts?