Newly diagnosed and so scared
In early July I got bronchitis and was put on prednisone for 5 days. After 3 days of taking it I noticed a lot of blood on wiping and My GP told me to stop the prednisone and never take it again. A few days later runny tummy with mucus started. I was put on the antibiotics Cipro, flagyl, Kantrexil and told to use Smecta (antidiarrheal with diocmectite clay) to help firm up my stools. Nothing helped. f
For a month and a half I suffered with lower back pain, cramping, nausea and runny tummy multiple times a day with mucus - no more blood and lost 10 kilograms. The doc did full blood count, blood sugar, hemocrit and all was normal so he said next step see a GI.
I was terrified I had cancer and got an appointment in Early September. I had a colonoscopy and the GI said he found sores / ulcers and did 3 biopsies of them. Straight after the scope while I was in recovery he said its Ulcerative colitis. The next day he called me and he said hes not sure it is UC but an unspecified colitis - perhaps a form of post infectious IBS that caused these sores and ulcers and I must just take prednisone for a few days and if it helps great and if it doesnt I have not lost anything. I cant take prednisone according to my GP.
I am scared of the UC diagnosis as it is such a terrible disease and its lifelong and progressive, but this diagnosis has given me absolutely no answers on what I actually have or on what treatment options I have.
I dont know what to think, I am really worried!
My last post/visit was 2011. The road has been up hill ever sence. The Dr.s and meds have not found a anwser to control my symptioms. Im looking for a suscess story of your's as to what has worked for you to maintaine remission. I see my spell checker is not working for some reason so I apolagise for all the miss spelled words. Thanks in advance. Searcher