Crohn's Disease & Ulcerative Colitis Support Group
Crohn's disease is a systemic inflammatory bowel disease (IBD) of unknown cause, that results in chronic inflammation of the intestinal tract. It can affect the entire gastrointestinal tract from mouth to anus, and can also cause complications outside of the gastrointestinal tract. There is no known medical or surgical cure for Crohn's disease, but there are many medical...
Diagnosed today...scared.
anxietymc
I've been hovering around this site the past week while I was preparing for a colonoscopy.
I found out after my colonoscopy today that I have Crohn's Disease. Biopsy tests are being performed to confirm this.
I'm really stressed out and have been crying about it all day because I don't know what that means for me and my life, lifestyle, future etc. Especially after reading a bit online about the disease and meds I have to take.
Tomorrow I start on 40mg/day prednisone for 1 week then taper down subtracting 5mg every week for 7 weeks. I also have to take 6 asacol tablets daily then increase to 8 tablets daily. The whole treatment is supposed to last approx. 2 mos.
I haven't been able to talk to my doctor yet about it (I literally had the colonoscopy today and he told me what I had while I was in the recovery room) and I have to admit I am freaking out (I have Generalized Anxiety Disorder). Can someone here help and let me know what I am getting myself into?
Thanks for listening.
I found out after my colonoscopy today that I have Crohn's Disease. Biopsy tests are being performed to confirm this.
I'm really stressed out and have been crying about it all day because I don't know what that means for me and my life, lifestyle, future etc. Especially after reading a bit online about the disease and meds I have to take.
Tomorrow I start on 40mg/day prednisone for 1 week then taper down subtracting 5mg every week for 7 weeks. I also have to take 6 asacol tablets daily then increase to 8 tablets daily. The whole treatment is supposed to last approx. 2 mos.
I haven't been able to talk to my doctor yet about it (I literally had the colonoscopy today and he told me what I had while I was in the recovery room) and I have to admit I am freaking out (I have Generalized Anxiety Disorder). Can someone here help and let me know what I am getting myself into?
Thanks for listening.
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I am now a week on the prednisone and asacol. Pain is starting to fade, at the cost of some side effects. Mild irritability, increased appetite and Insomnia have hit, but I am finding ways to manage with it. I am instructed to consult with the doctor weekly and provide a progress report via phone or in person to let him know how things are going. My doc is the director of the GI department at the hospital and also heads up a university's GI program so he seems to be well informed and on top of things for me, thankfully.
I have been managing my anxiety via medication and therapy for a few years now and finally have it in control to a point where I do not take anymore meds except for xanax in emergencies. I do not believe in taking more meds than I actually need so for the time being, I wear myself down with exercise during the day to help me wind down a bit in the evening. I am also practicing self care at the moment: meditation, incorporating clean eating into my diet (which I started about a month before this diagnosis) among other things. If things get worse, I will consider asking the doctors for additional meds to help but for now I seem to be coping.
It is so refreshing to have a new member who is so positive! I can learn so much through your attitude!
We don't have to positive all the time; that's a tall order and not sustainable and not even realistic. But we also don't have to assume our worlds are coming to an end and panic when we get this diagnosis. We just have to adjust your thinking, how we want to move forward in the world, and how we want to see ourselves living with IBD.
I always feel like, when I have a game plan and strategies for my UC, I am more resolved and stronger, with the disease and just in life in general.
Once of my favorite lines is from a Black Crowes song: "I've been down but never on my knees." I feel that way about many aspects of my life, including UC.
I guess I have always been the "panic first, rationalize after" type of person. I think in this case it is justified because I knew little to nothing of the disease at diagnosis.
Typically once the initial anxiety/panic fades in a situation, I instinctively become proactive in researching and problem-solving. I can't just let a problem fester for too long or I go crazy. That's the approach I seem to have taken with this CD situation.
Still have mixed emotions about this, but the only choice I have is to make sure that I am living comfortably with it to the best of my ability I guess.