Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
thaliajen
Hi- I'm not sure what to do. I've had RSD for 14 yrs. It's been treated with morphine, successfully for all that time. My doctor in Houston passed away very unexpectedly & had no partner. After all that time I forgot how doctors are about chronic pain. We moved to MI a few years ago but b/c I returned often to Houston (I'm a travel consultant) I kept my doctor there. When he died I went to a "pain clinic". The doc there spent all of 5 minutes with me. He agreed to write my scrips (only the morphine, thank God I had extra diazepam for the muscle spasms) until I saw someone at their partner clinic. That clinic only does suboxone treatment. So yesterday I'm in shock as I meet with a nurse who tells me I have no options but to go in hospital for at least 5 days as they take me off morphine and put me on suboxone. That drug is for helping addicts come off opiods and doesn't have a good track record with pain control, especially RSD. I've been spoiled in that I live a full life with a husband, 1 year old son, and have never had to increase my dose of morphine in 14 years. Never. I get same amount each month. 14 years. My pain was 100% taken care of. It's a bit worse in Winter (I don't know why, it just is) but I take same dose every day. I'm literally terrified. I want to find a doctor who isn't afraid to treat me. I am shocked that pain patients get treated this way! The clinic practically works for the suboxone drug company- it's all they do. The nurse said that it would help with the RSD pain and they'd do everything they could to help with the pain. (Except what has worked for 14 years.) I need a compassionate doctor, not a pain clinic where they make money off people who suffer. If their injections don't work for you (nerve blocks, etc.) then you get suboxone. I have read such horrible things about this new drug. If they were to switch me to something that worked or offered a cure, I'd be thrilled. But they're offering only suboxone. And a long and painful withdrawal in a hospital. Where can I find a compassionate doctor who would see that I'm not abusing anything, that the RSD is excruciating, and isn't afraid to treat me correctly? I'm so scared that I'll end up back in bed where I was when I 1st was diagnosed, afraid to move b/c it hurt so bad. I work, I'm a mom, and have a full life. I can't handle the pain again, I just can't. I'm sorry to take up this space, sorry I have RSD, sorry, sorry sorry. I am so sick at the idea of this! I just can't stop crying & feel so stupid that I let myself get into this position. I have about a month's worth of meds left. After that, what else can I do? What made it almost laughable yesterday is that the nurse said they'd treat me different b/c I'm not an "addict" but a pain patient. But the drug is known for addicts. And on the wall there's an article about 1 of the docs praising him, but that states that suboxone is not a proven pain medication. I am at my wits end. I'm scared to death. How can they DO this to people?
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Sending Hugs & Prayers that you find a doctor that works with you and things work out.
Mary
i sure hope u fins comfort and help
hugs
Rhonda
I agree with you. I honestly feel that for someone like you, who has been controlled so well for so long, needs to find a compassionate GP or internist. You know what works and you need someone to monitor not only your need for pain management but for your entire general health.
You don't need "procedures"---you have this figured out now. Stick with what you know works for you. Best of luck. SB2