Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
thaliajen
Hi- I'm not sure what to do. I've had RSD for 14 yrs. It's been treated with morphine, successfully for all that time. My doctor in Houston passed away very unexpectedly & had no partner. After all that time I forgot how doctors are about chronic pain. We moved to MI a few years ago but b/c I returned often to Houston (I'm a travel consultant) I kept my doctor there. When he died I went to a "pain clinic". The doc there spent all of 5 minutes with me. He agreed to write my scrips (only the morphine, thank God I had extra diazepam for the muscle spasms) until I saw someone at their partner clinic. That clinic only does suboxone treatment. So yesterday I'm in shock as I meet with a nurse who tells me I have no options but to go in hospital for at least 5 days as they take me off morphine and put me on suboxone. That drug is for helping addicts come off opiods and doesn't have a good track record with pain control, especially RSD. I've been spoiled in that I live a full life with a husband, 1 year old son, and have never had to increase my dose of morphine in 14 years. Never. I get same amount each month. 14 years. My pain was 100% taken care of. It's a bit worse in Winter (I don't know why, it just is) but I take same dose every day. I'm literally terrified. I want to find a doctor who isn't afraid to treat me. I am shocked that pain patients get treated this way! The clinic practically works for the suboxone drug company- it's all they do. The nurse said that it would help with the RSD pain and they'd do everything they could to help with the pain. (Except what has worked for 14 years.) I need a compassionate doctor, not a pain clinic where they make money off people who suffer. If their injections don't work for you (nerve blocks, etc.) then you get suboxone. I have read such horrible things about this new drug. If they were to switch me to something that worked or offered a cure, I'd be thrilled. But they're offering only suboxone. And a long and painful withdrawal in a hospital. Where can I find a compassionate doctor who would see that I'm not abusing anything, that the RSD is excruciating, and isn't afraid to treat me correctly? I'm so scared that I'll end up back in bed where I was when I 1st was diagnosed, afraid to move b/c it hurt so bad. I work, I'm a mom, and have a full life. I can't handle the pain again, I just can't. I'm sorry to take up this space, sorry I have RSD, sorry, sorry sorry. I am so sick at the idea of this! I just can't stop crying & feel so stupid that I let myself get into this position. I have about a month's worth of meds left. After that, what else can I do? What made it almost laughable yesterday is that the nurse said they'd treat me different b/c I'm not an "addict" but a pain patient. But the drug is known for addicts. And on the wall there's an article about 1 of the docs praising him, but that states that suboxone is not a proven pain medication. I am at my wits end. I'm scared to death. How can they DO this to people?
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Maybe try another pain clinic or a different doctor that could refer you to one that actually treats pain with medication meant for pain management and not something for addicts.
Please call your insurance and request a list of docs accepting new patients! Make as many appointments as you can with any doc willing to make an appt with you! You do have choices and subuxone is not the only one! What did your former docs office do with all of his patients? Were you referred to this sub doc by his office? Don't give up and maybe even lower your dose to be able to stretch the morphine you do have out a lil longer if you cant find a replacement doc within that 30 days!
Also, try going to an urgent care and explain that your doc just passed away and you need to find a doc accepting pain patients! Often times urgent cares are full of new docs that are opening their own practices and are seeking patients to bring on board to their practices!
I almost asked my doc about subs and after much research, I have chosen to hold off as it is viewed as an abuse resolution! However, many members on here do use subs for pain management and have very positive experiences on it!
Don't give up! There are docs that understand and will truly "get" the position you've been put in!
Best wishes, keep your head up!
Riss
Most pm docs are idiots that don't know anything, nor do they care. they want money and that is it. Howevere there are good ones out there, you just need to keep at it. Most of the time you will know in the first few min if they are worth anything. If they seem stupid then fire them and see a new one, and just don't give up
My 5th pm doc spent two hours with me got all my medical records, started me on tramadol which didn't help and now have since moved me up to oxycontin and oxycodone, we have tried everything together and nothing helps, he goes out of his way for me, he is wonderful, best doc I have ever seen, and I never would have found him if I had given up, so just keep looking you will get your morphine back sooner or later
You should be able to stick with what has worked for 14 years. My first choice would be my GP or Internist. Honestly, while some people have had luck finding PM Dr's, it seems that having one Dr. prescribe for you is best. Good PM Dr's seem to be few and far between.
For you to be able to live a full life on a pain medication that works well for you is where you should be kept. I wish you all of the luck finding someone to take over prescribing for you. SB2
Please get your records ASAP. Without those, you can't prove to whomever you see (hospitals, ER, docs) that you were a LEGITIMATE pain patient. I apologize for the rude treatment you received. But unfortunately, I know way too many people (nurses, docs included) that group CP patients in with addicts. It's a shame. Truly a shame.
I put the rest of my info in my message to you, so....I don't want to retype as it HURTS my wrists terribly today.
I'm so sorry. I hope you find a good pain doc quickly.