Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
Hi,
I am new and feeling lost. I have multiple health challenges and other challenges. I have been getting very drain for a few years now and it is getting worst and worst. Everything makes it worst, either I do too much hosue work, go for a short walk, had a stressful phone call, or be on zoom too much, or just sitting up for an hour. I have been having so much bed rest that i am blue. After a few days of bedrest I feel better but only for 1-3 day depends on what i do or not do. My body hurts and my other illness getting worst because I am so drain.
My new therapist since last July asked me to ask my PCP to evaluate me for chronic fatigue. I do not know much about it. Can you please recommend a link? Plus what helps?
I am always too drain or too fatigue to do much and i cries a lot because I am losing control of how to maintainmy home. I feel like I am losing a battle I am fighting and I am having faith that it will work out for me. I am really sad. I love to encourage others and that is where it is..... I am tired. Thanks
It's good that you're Dr will evaluate you. Then they can run tests to make sure it's not something they can treat like hypothyroid or something like that.
This is a link to one of the foremost mecfs groups there is lots of information there.
What you are experiencing after you do something and then feel very tired is generally called post-exertional malaise or PEM for short.
It's one of the major hallmarks of this illness.
Hope you get some answers. Till then stay hydrated try not to overexert when you feel heart rate startup faster it's time to sit down and rest, and keep a journal of what you do for how long and how tired it makes you it will help your doctor and help you figure out how much energy you have to work with each day.
Wishing you well.
https://solvecfs.org/
Thanks for information. I will.
Online guided meditations are excellent for deep relaxation. The Honest Guys on YouTube are wonderful.
Don't lose hope and know that you are not alone and people genuinely care that are suffering.
It's not easy to think positive when you are pinned down so frequently by your depleted body. However, practice doing positive affirmations to lift your spirit. Do it every day. Do not be defeated.
Love and blessings and prayers for healing to you.
Thanks. Two weeks ago i was dignosed with sclerodrema and am learning not to over exhaust myself BUT at the same time trying to do what bring pleausre to me. I have learned my lesson with sugar 100% when I ate that cake. Plus I am now attending support groups zoom which both DS and zoom support group I am learning to do better which is so cool. Yes, it is not easy to think positive but i am trying. I am like you an encourager. God bless you too and thanks for your prayers
I understand the challenges u have as I face them myself alone
My own way of doing things is to give thanks for every positive thing in my life.
I cry out to the unknown [to God, Jesus, actually] bc thats all thats left a help for healing; in even the tiniest ways, I find something has been answered, or a blessed path to take in medication/herbs even
I havent taken the covid vaccine bc I had a bad reaction to a flu vac years ago. I have decided to wait till the better weather before taking it. I do hope you have understanding people around u who can give you empathy and the sensitivity to your needs....please stay positive of things improving; when one door closes another opens. Try to hand house issues to a friend/family, whatever, dont worry.
You are a carer, but you need some me-time; this can be a place for inner growth and strength; we get deeper in character thru adversity; when we /you ! get to the end of the tunnel we can then help others; set your hope on the light ahead! Strength, wholeness, healing, love and light be upon u today and always
There is no amount of food that could repair your body at this point, vitamins are needed also because the body has been put thru so much stress that lots of nutrients have been depleted. Once you get caught up on rest and taking a good vitamin, you will begin to feel normal again.