Cerebral Palsy Support Group

Cerebral palsy or CP is the most common childhood physical disability. It is a permanent physical condition that affects movement. There is no cure for cerebral palsy, but various forms of therapy can help a person with the disorder to function more effectively. If you or a loved one has cerebral palsy, join the group to share your experience or get advice from others.

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Brain & Nervous System
/ Cerebral Palsy Support Group

Running out of steam

AB007
AB007

I was diagnosed with CP about nine years ago. After years of walking with a stride all my own, a doctor asked about my gait and it being scissorish. To say the least, down a rabbit hole I went. After tons of denial and then numerous tests I was diagnosed with spastic diplegia. It only affects my walk and my balance. 
I grew up in a no excuse world and have done everything any other person has- sports, smart a whip, and now I'm hurting and stiff past any over the counter medicine can help. I've never let anything hold me back and now it seems to be getting worse and I feel like I'm in a spiral. 
Ive driven myself to the edge and now I find myself seeming feeling like a burden. I was told by someone close to me that they didn't want to excercise walk with me because I would hold them back. Devastated. I would have never thought. 
told I was being unrealistic about my expectation to be included in that. 
no one I know can even begin to understand the struggle I go through daily, the never ending pain and now this. 

guitarman79
guitarman79
Cp Definitely Is not easy, Your gonna have day's and bad........Because, it is so in consistent. There is lot's of info if You google it. One good recourse I found is: cerebralpalsyguide.com

If people don't want to be friend's with You Because You slow them down.....That's their problem, The right people will look past Your problem, and see You for You and not judge You on how slow You walk or the way You may talk....Those people aren't worth it.

It took me a while before I realized that.
jessekay
jessekay
People ask me almost every day what’s wrong with your hand why do you walk like that I was just one with CP people will have to learn to accept you no matter what your diagnosis is don’t let people bring you down because I deal with it almost daily and it’s OK you’ll learn that self confidence is key don’t want another negative and harsh criticism it’s just downright wrong with people to judge just saying
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