I can relate. I have mild cp also but about 10 years ago things went downhill for me. MY Drs told my husband to find me a nursing home and place me in there. I could get Neuro rehab there is what they told us. He felt there was nothing else that could be done. Hearing him say my children could visit me, made me scared and hurt. Needless to say I found a new dr. and had a baclophen pump placed in my spinal column. IT has saved me a bunch of pain and given me back my life. My muscles just keep tightening and my doctor turns up the medicine. I am losing the battle again. I walk everyday at least 2 miles and stretch and do ice/ heat but the pain is just horrible. The good news for me is my kids are 19 and 17 and I raised them and stayed mobile. I met my goals with my husbands support. I am scared what the future holds for me as well. I am 45. Just wanted to tell you you are not alone. I walked this morning and it hurt so bad I puked on the side of the road but I walked. Just can't say how much I can keep doing this. Everything effects me, the weather, what I do for activity and if I sit to long. If I sleep 6 hours without waking up to move, I need heat to move my arms. It is kind of a lost cause but I keep fighting for my dignity and independence.

I am impressed, walking 2 miles! I would be exhausted for the rest of the day. A heating pad has become my best friend.
Another issue: Depression! I have been depressed throughout my life. I believe I have tried every anti-depressant there is. Every few years I try again hoping something helps. The problem is, they hurt my muscles, which already hurt. Have you had any experience w this?
What gives you relief?
I had knee issues. Before a replacement, they tried everything else first. Steroid shots, gel shots, brace, etc. Well someone had told me that dyclofenac helped their knee pain/arthritis. It helped my knee as well. When I stopped taking it, my whole body hurt. I asked my Primary Dr. if I could continue the use. She reluctantly let me along with an anti-acid. I can tell if I miss one day. It helps a lot.
Do you walk with any kind of aid/ cane, walker? My balance has gone out the door. Therefore I fall a lot. It happened when I got the new knee. I guess it made that leg a little longer and I can't seem to adjust.
I have kids as well. So thankful for that. Thanks for your response. I got excited!
Lisa

Yah, I work out 3 times a week myself, Lately I've been riding a exercise bike, When i get off I'm stiff and barely move without losing my balance.

I did read something a few week's ago in reference to what You're talking about: People with cerebral palsy, the muscles and organ's age faster, then a person without the condition.
I know That sound's grim and not positive......But, that's what we have to live with.

I guess the question is, which I think I know, do we exercise or not? It makes me so sore that I have to take meds.... a vicious cycle. So I guess you play guitar? I'm into precussions and harp!

Yes exercise has helped me, I have workedout for quite a few year's now, But I still have problem's, and Yes I do play guitar...........I try anyway

I'm sooo tired.

hi im 31 and seem to be having more pain fatigue aches all over. my legs feel tighter now and achy. Aging too fast. I feel fatigued fast from exercise and get very sore after. i think its common in alot of us. i have mild mixed cp.