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Does anyone have "Bouts" with their symp

walksindarkness
walksindarkness
Hi All,

Does anyone have "Bouts" with their symptoms?

What I mean is going through stretches, whether it be days or weeks, where my spasms/cramps/pain seem SO much worse. This week is one of those weeks, it is terrible trying to get through the day at work.

I am wondering if this is normal for some folks. This is another issue that crept up on me as I hit my 40's. It worries me sometimes, that it might be a new degenerative issue like MS or something...
guitarman79
guitarman79
You should get checked ou by a dr. then, I have read ms is a symtom of cp, and ms is progessive. I've also read that those with cp age prematurely at 40. So, I'd get that checked out.

Hope this helps.
Feel better man.
walksindarkness
walksindarkness
I am going to see a neuro in March for Botox consult anyhow, I am going to mention all this other stuff too. Hopefully it will be more of a useful experience than these guys have been over the last few years.

I have grown to be one of the people wary of vaccines. All of the bad symptoms started after I got back from a business trip in China. Two months before I left, I had to get several vaccinations before I left. I truly believe that it caused and autoimmune response, which either caused a new condition or worsened an old one. I had to get Hep vaccinations, and there is some anecdotal evidence that Hep B (IIRC) is suspected of invoking neurological disorders. I suppose I could have some into contact with some "pathogen" while in China, but I never left the Hotel or Factory. Who knows...
guitarman79
guitarman79
Good luck, Hope You get the help Your looking for.
Grimmc
Grimmc
I have noticed a similar pattern in my own CP. I will have days where I am ok and can carry on my day to day life... I also have the 4-5 days in a row where my spasms are constant and with that comes pain from my muscles and joints. I don't think (for me anyway) that he has anything to do with shots or vaccines.

I have been getting the botox injections for about 3 times and they do help. I feel like my bad days are related to weather mostly. It could be other factors too.

My best advice is try and break down how you feel during the good days and the bad ones. Keep a journal if it helps and present that to the neurologist. It should help a great deal!
deleted_user
deleted_user
i know what your going through but i haven't tried Botox yet. im kind of leery about it. i don't think it has anything to do with you going to China, though. i think its just the weather and our muscles and the way that they are. With the weather and stress the spams increase. Therefore my pain goes up and down too. have you tried ,massage therapy and alternative medicines rather than traditional meds? if you want to email me so that we can talk about this you can. i wish you good luck and we should talk soon leave me a message. my name is Colleen
ma1mar4
ma1mar4
I am having one of those weeks. My leg muscles feel so tired and I constantly loose my balance.
deleted_user
deleted_user
Sometimes
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