Cerebral Palsy Support Group
Cerebral palsy or CP is the most common childhood physical disability. It is a permanent physical condition that affects movement. There is no cure for cerebral palsy, but various forms of therapy can help a person with the disorder to function more effectively. If you or a loved one has cerebral palsy, join the group to share your experience or get advice from others.
Hi I'm 19 and have had cerebral palsy since I was born. I don't know what type of cp I have. I have tremors or involuntary movements that affect my arms and hands my left hand is worse than my right. I had physical therapy till I was 17 and still do those stretches but they never showed any interest or concern about my (tremors or involuntary movements?).
What kind of thing like tharipy or exercises... do you do that helps you gain more ability when it comes to your hand function or what do you do that decreases the amount of unwanted shakiness in time? I have no interest in taking things or have Botox. Please let me know what you do I would love help so much.
What kind of thing like tharipy or exercises... do you do that helps you gain more ability when it comes to your hand function or what do you do that decreases the amount of unwanted shakiness in time? I have no interest in taking things or have Botox. Please let me know what you do I would love help so much.
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I haven't written in my diary on my computer since May because I thought that my computer was dying. I got away from writing but my computer is hanging in there. I think that I will start writing in it again. It's so therapeutic.
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So voc rehab finally got in touch with me...it took like six months finally. The voc rehab person that they assigned to me is a lawyer and extremely knowledgable on disability law and he seems to know a great deal about how to get people placed in jobs and how to make their resumes pass ATS. I was really surprised at how articulate and energetic he is. I guess my question is how much I...
I wished I had a good response for you. It appears the medical establishment overlooks issues like the tremors, but I believe they really don't know the answer. I have found Pilates to be helpful overall for muscle control (which is part of the issue with tremors) and balance, but insurance does not pay for the sessions. And not all Pilates instructors (or therapists for that matter) are alike as I am sure you know. So, you would have to "shop around" for someone who can help depending on where you live. My Pilates therapist has cerebral palsy, but one would never know it by looking at him. He knows other therapists around the country. If you want, leave a message here and I can ask him if he knows someone where you live who can help.
I know what you are going through is frustrating. If I can help more, let me know.
Katali
What Your describing, The tremor's And voluntary movement's sound's like Ataxia, (the rarest of the cp's) I know, Cause I have it too, There Is nothing You can do for it.
You can try supplemental therapy, I work out 3 day's a week....Which has helped.....seem's to help slow the progression of The disease/disorder.
Here's a link, that describes symptoms, www.ninds.nih.org
Sound's like ataxia thogh