Cerebral Palsy Support Group
Cerebral palsy or CP is the most common childhood physical disability. It is a permanent physical condition that affects movement. There is no cure for cerebral palsy, but various forms of therapy can help a person with the disorder to function more effectively. If you or a loved one has cerebral palsy, join the group to share your experience or get advice from others.
Hello. There are a lot of posts on this forum about botox treatments and children but not as many on botox and adults (or perhaps I am just not finding them). I see a few posts but not as many as I hoped to find. I've never had botox shots but I know someone with CP who has. She said it really helped her for a few months but then she saw the benefits diminish. Her case of CP is a bit more severe than mine but I still have challenges. For instance, my muscles can get really tight which affects my balance. I have been hesitant to try botox because a) I don't know if it will benefit me and b) I am concerned about possible side-effects. Can someone who had the treatment before tell me how it affected them? Did you experience any negative side-effects? Are there any good resources out there on how the treatment helps (or is intended to help) persons with CP? I actually did a Google Scholar search but I did not find anything worthwhile. I typed in carebral palsy AND adult AND botox.
Any feedback would be much appreciated! Thanks in advance!
Any feedback would be much appreciated! Thanks in advance!
-
I haven't written in my diary on my computer since May because I thought that my computer was dying. I got away from writing but my computer is hanging in there. I think that I will start writing in it again. It's so therapeutic.
-
So voc rehab finally got in touch with me...it took like six months finally. The voc rehab person that they assigned to me is a lawyer and extremely knowledgable on disability law and he seems to know a great deal about how to get people placed in jobs and how to make their resumes pass ATS. I was really surprised at how articulate and energetic he is. I guess my question is how much I...
Ive been getting botox injections for the last year or so, and they have been incredibly helpful. Im 35, have spastic diplegia, and can walk without any aids---which will give you some sense of my level of spasticity/function. For the previous three years I was plagued with serious and sometimes debilitating low-back pain. The botox---which is injected into my calves, hamstrings, inner thighs, and hip---has helped alleviate a lot of my pain.
I say that it has helped alleviate my pain because, in my experience, the drugs are only part of the solution. In addition to the injections, I go for physical therapy once a month and exercise on my own 4-6 days a week. The combination of botox, cardiovascular exercise, and strength training has been really successful in managing my spasticity and increasing mobility. It's not easy, and demands a lot of sweat-equity but for me it's been worth it. My gait is much improved, the acute pain is gone, and Im a much happier camper.
Im happy to answer any questions about my experience. I have not had any negative side effects thus far. I did do a bunch of research before starting the treatments and am happy to share what I know. I also have been keeping a blog about my experience. Feel free to send me a message and Ill direct you to it, or any other information Ive got.
Best,
DQ
I have the same problem, I have miild Ataxia, and my muscles tighten up and it throws me off balence.
Like U I have questions about Botox with cp.
Nice to know someone feels lie me.
Good luck with ur search, I hope U find answers
I will look into the injections...
I might be in the minority, but I feel like some of the stretches and deep tissue massage I've suffered through over the years has been much MUCH worse than the injections. That deep tissue stuff goes on forever, the injections, seriously take about 5 minutes.
I'm due for shots tomorrow actually--which is 13 weeks from my last round. I still feel pretty limber and my calf muscles are still fairly soft.
But it sounds like other people have had different experiences? So I'd be interested to know how long they last for you all?
But honestly, for the benefit, it's worth the 5 minutes of pain. I think the worst of it is feeling the pressure of the volume going in. My doc shoots me with some cold spray first, which seriously, on my inner thigh is worse than the needle, which I barely feel.. Yeesh. . .
I've never done baclofen, so I can't give you a comparison, unfortunately. Good luck and let us know how it goes. . .
I have been told the injection freezes the affected muscles, so, won't the injection paralize the m,uscle so it can' be used again like if my hand's get injected will I be ale to use them?
another question is, where are these injection's done?