Colburn

Long time since I have written.  I do keep a prayer journal and comment in there about my health status as well.  It has been over a year and a half since dx.  It has not been easy that is for...

How quickly things change.  Happy to report that I have an appt. with a neurologist on the 27th of this month.  I don't think there is much he will be able to do for me but would like a second...

Happy to report I have been off prednisone for over 1 week.  Plaquenil appears to be keeping the big stuff at bay.  Only hope I can get well enough to at least work part time.  Thanks for thr hugs...

Saw Dr Timms yesterday.  Not a good visit!  I don't know if he was just in a bad mood or what!  I have been on methlyprednisilone for several weeks, 8mg, and plaquenil for 8 weeks.  Have tried to...

Went to the rheumatologist this week.  He confirmed the Sjogren's dx.  It is official now!  Anyway I just started Plaquenil 2 days ago and am slowly reducing the steroid.  Have had some real up...

I am so sad!  I just finished medrol dose pack last Sunday.  Tuesday cried all AM then got a hold of it.  I think it was a coming off things along with realizing the symptoms were coming back. ...

I have taken the steroids for 6 days and am off now to see how long it helps.  The first day I felt so good it was scarey.  I was full of energy and euphoria!  I knew it was the med but didn't...

Brain MRI was normal.  I guess that would rule out MS. Lower lumbar MRI has some bulging disks but no nerve entrapment.  That is good.  Blood tests that the rheumalologist ran all normal except...

Finally!  My husband and I went to the rheumatologist today.  I liked him and he was comfortable to talk to.  Of course there are no answers yet.  He drew a bunch of blood.  MRI of the brain and...

Wow!  What a hassel!  I got a virus on my computer when I was on Facebook and it took me two days working for several hours plus paying money to get it off!  I'm glad to be back on.  Next week is...

Still playing the waiting game!  Will see the rheumatologist the 27th.  I hope he will have some answers for me.  I continue not knowing from day to day how I will feel.  The prednisone helped...

What to say?  What to Say?  Still in a place where things change rapidly.  Good one minute.  Mentally challenged the next!  Stopped Prednisone completely yesterday and feel much better.  Made...

Although I am feeling rough this last few days I had a good two weeks and a little more of feeling good.  Never can figure what makes me flare up.  I am hoping to get through this flare without...

Had a terrible time Jan and Feb.  Sinus and cough placed on antibiotics.  Was taking large perscription doses of Vit D.  Also Fosamax.  Only supposed to stay on it for four months to treat...

Am sad to report not feeling well since the first part of Jan.  Started off with a horrible cough, then antibiotics, then a flare.  I have not been able to get back to the level I was before...