SusieG
Status:
Mood:
Excellent
- So entering week 7 of inflammation and pain in feet and hands. Have any of you experienced such a long flare or is it more likely that my medication has stopped working, which seems to be the norm for me though this one (Kevzara) has lasted the...
- I am breaking up with my Rheumy for many, many reasons. I've found a few others locally that take my insurance and wonder if anyone here is a patient with any of them. They are located in Trexlertown or Pottstown, PA.
- Hi all - Holding steady with symptoms under control on Kevzara and bloodwork not concerning enough (yet) to stop doc from renewing my scrip for another 3-6 months anyway. :) I am curious though if anyone else is taking it? I know I'm not on here a...
- ...since I've been on this site. First, because I was in remission, and then because I was put on a med that's been working quite well for me. I've always recognized a flare when I've had one and thought I'd throw my current circumstance out...
- Blood work confirms my remission is over. Also, my rheumy has left the practice. I see another doc under the same practice's "umbrella", and am hoping my experience with him is better than with the office staff so far. UGH! Seriously, I...
- After 7 weeks on no RA meds at all, my bloodwork is settling back to normal. The numbers that sent me to an oncologist were not caused by Leukemia, but by Enbrel. That's GREAT NEWS! Here's my question to y'all: Durin my 7 week hiatus, I had...
- Blood results from Monday prompted doc to call me to see hemotologist/oncologist ASAP. Stop the Enbrel and she won't start process of anything new until I see specialist. So I call one in my insurance network only to get the first appointment...
- So I saw my rheumy this morning. Blood tests confirm disease activity on the rise. She said 8 points up was significant, mine jumped 12. My WBC continues to plummet. Now add enlarged lymph nodes which, since no infection going on in me, can...
- Maybe a weird question, but do any of you RA peeps seem to have exaggerated reactions to bug bites? A simple mosquito bite causes the area to itch (of course), but also swells, like my whole wrist, and is red and warm. Same with tick bites. ...
- So results of my Vectra test are still in the normal range, though higher than before. So how to explain this significant increase in pain? Doc had indicated at my last visit that I would most likely be staying on Enbrel if the x-rays and Vectra...
- How do you know the difference between experiencing a flare versus your meds no longer working? Please God let that not be the case...
- Have any of you flown with your injectible pen in the a coldpack bag, in your carry-on and had an issue with TSA? Does it just go through as a non-issue or do I need to be armed with documents?
- Those of you who have had to change meds waiting to find one that works - typically, when one finally did, did you know fairly quickly? I tried Humira for 6 months with no relief. I've now been on Enbrel since 10/31 with no effect yet. I know...
- Anyone else diagnosed with this lovely new wrinkle in my RA journey? RA running amok in my body and attacking white blood cells opening me up wide to infections. Great, huh? Well, it is also proof positive that the Humira was not working. I...
- If I read one more time that weight loss is a known side effect of RA, I will scream! Has anyone here ever been that lucky? I admit that I am an aging female at a time in my life where metabolism slows to a crawl, but I am fighting it the old...