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flawdnotclawd

Status: Feeling better....just want to hold onto it

Mood: Ok

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wrong dx again

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Hi everyone. I'm a member of 5 different groups because I've been to more than 6specialists in the past 5 months and been given 6 different diagnoses. Started in June with a bad bronchitis that just wouldn't go away even after 2 mths on antibiotics...
wrong diagnosis

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I just have to share this insane dx roller coaster I've been on and hope it helps others. I've been to six specialists in past 5 months and had 8 different diagnoses including: mctd, fibromyalgia, CFS, Ms, myasthenia gravis, mastocytosis, peripheral...
conflicting dxes

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I was dxed with fibromyalgia over 20 yrs ago. Recently had bad flare of symptoms and went to a new rheumy. This rheumy said just fibro and arthritis, maybe mctd. Went to a other rheumy who said not mctd, maybe fibro and CFS. Osteo said all caused by...
conflicting diagnoses

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I was diagnosed with just fibromyalgia over 20 yrs ago. Recently have had a bad flare and went to a new rheumy. She said I have fibro and arthritis, maybe also mild mctd. Went to another rheumy who said no mctd, but maybe fibro and CFS. Went to an...
Copaxone and anxiety

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I have recently been dx with Ms....doc told me to research the meds. I don't like the side effects of any of them but copaxone seems least problematic. However, I have been prone to had (generalized anxiety disorder) whole life. Does anyone know if...
ms or fibromyalgia

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Hello. Been playing musical specialists. 2 rheumys say its fibromyalgia, 1rheumy said it might be mctd. Endo and osteo both thought yeast and chronic fatigue, and now neuro said I most likely have Ms. I mentioned to her I was already diagnosed with...
yeast diet and fibro

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Saw an osteo. He advised me that all fibromyalgia as well as a host of other ills caused by too much yeast in gut, typically caused by antibiotic overuse, diabetes or bad diet. Yeast leads to leaky gut and food seeping into blood stream, causing...
antibiotics for cfs

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Hello. I'm new here. But not new to cfs or fm. I think I've had bouts and flares for years. Recently diagnosed. I have been reading on net that some docs believe cfs may be caused by viruses, particularly cmv, ebv or other herpes. I test pos. But...
pain vs exhaustion

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I've had fibromyalgia for 20 yrs or more. In the past, it came in flares after intense stressors. I typically had different types of pain of different intensities all over. Also seemed to get sick alot with sinusitis and bronchitis that would last...
inept doctors

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So finally went to long awaited rheumy appt. With lab results of very high rnp but beg. Ana. And list of more than 15 symptoms of mctd. Rheumy insists that without pos Ana or ranauds can't be mctd. Despite reading to contrary. He thinks most my...
mctd and guillain barre

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I had GB when I was 19. Complete paralysis, one month. One year complete recovery. Ibs, fibromyalgia, diabetes, metabolic syndrome, fatty liver over next 30 yrs. Now, at age 57, diagnosed with mctd. Seems like many similar symptoms and causes to GB....
mctd and guillain barre

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Hi. Was wondering if anyone else has ever had both of these? I had GB when I was a teen. Now recently diagnosed with mctd. Feels very similar and has common causes and symptoms. Very concerned the mctd can morph into gb/cidp and attack nerves....

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