leapea1208
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- I've struggled with writing this for a while now as I know the words I'm about to say we're going to come as a shock and potentially frighten some of you, and fir this I'm so sorry and I debated not sharing at all. But I find strength in our group...
- Hi gangJust looking for input, Tony is almost 15 months post SCT and starting around Feb or March this year he has fought one cold/virus/illness/etc per month or so. We knew he was going to have low immunity for quite some time after transplant but...
- I know this has prob been discussed before but tony just got dx w a mild (so far) case of shingles. He's 13 months post bmt. Looking for experience and advise, reassurance etcHis counts 2 weeks ago were good (6.8 WBC,14.1 heme, ANC 4.1) so wasn't...
- Hi friendsIt's been a while since I've given an update. We celebrated Tony's one year transplant anniversary yesterday on July 10th, had bone marrow biopsy done on Wednesday. The preliminary look at the slides, his Dr. emailed us yesterday...
- Friends- I know Immunotherapy vaccine trials is nothing "new" but this documentary is the best example I've seen of the progress of cancer treatment!!! it's unbelievably amazing please watch all the way to the end because they end with treatment...
- Hi everyone. We're At hospital now for tonys second preemptive DLI dose today. He's been battling a lil mild rash and itchy dry skin since last dose, nothing major so we proceeded with the second infusion today. His labs were ok, whites 4.6 (lately...
- We are scheduled for the first dose of the clinical trial preemptive donor lymphocyte infusion that tony signed up for, this Monday at noon. We have mixed emotions as we know the lymph count is low after transplsnt and this will help w viral...
- Hi everyoneToday is day 100 post transplant for Tony. It's literally been a blur, July 10th, transplant day seems like forever ago! We are so grateful for all of the prayers and advise we've received. We have had such a long road (relapsing at 13...
- A video a friend sent me, even though it's made by a child, for other children, I found it very moving and encouraging. What a beautiful lil warriorhttp://abc7chicago.com/health/5-year-old-girls-inspirational-cancer-commercial-/328672/#gallery-4
- We are day +80..,Tonys been tapered early off all the immunosuppressive drugs (at day 50, normally they taper at day 90 at u of c) in order to get prepared for the "preemptive DLI study" we signed up for, he has some stomach issues (increased...
- I know everyone says not to focus on one number, just the trends, so I waited a week to post this. Tonys platelets have dropped every lab since last Monday, they were 51, then 43 Wed, then 37 Friday, now 23. We are terrified as to why. We are day...
- We are at day -2 and things have been pretty much as you all have described, chemo week is basically uneventful, except for the significant rash and hives tony developed from the t-cell depleting chemo drug "Campath". Most of that has resolved by...
- Just want to give everybody an update on what was going on we checked out of the hospital on Thursday went in for first labs yesterday whites 2.6 platelets 219,000 red 11.1 anc 1000! The docs were shocked and impressed with his counts so They ended...
- We are settling here at the new hospital. Encountered a few hiccups with the picc placement procedure team, they put in a single lumen accidentally, instead of th double on Friday, after I had a few heads on a platter, got them to come back and...
- Dear friends- just got a call from Tonys doctor, there are 10% blasts in his marrow, indicative of a relapse on the horizon. We are stunned as we had the best cytogenetics possible, 80% chance he wouldn't relapse and inversion 16, c-kit negative and...