hergma
Status: granddaughter with PTC
Mood:
Ok
Offline
About Me
Age: 0
Gender: Female
My granddaughter was dx\'d with PTC in Dec 2013. She\'s had 4 LPs so far and is on Diamoxx 1000mg daily. She is 16 yrs old (was 14 at time of diagnosis). The neurologist says she doesn\'t fit the so-called \'typical\' profile. I don\'t believe much in typical profiles, but oh well. Every time she\'s had an LP her opening pressure has been 55, 60 or higher. :(
