Monnie45's Posts | DailyStrength

Status: I am retired now. I also was diagnosed with Myotonic Dystrophy 2.

Mood: Ok

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medication

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Hi, my doctor prescribed provigil for me for fatigue. I checked with the pharmacy and although I have medicare, the cost if substantial and I will be in my donut hole quickly. It runs about 500 dollars for a 30 month supply. Although I am not...
Is this Menieres

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Hi, I have been diagnosied with a form of muscular dystrophy and also Meniere's. I have had symptoms that have been annoying and although there was some confusion which of the diseaeses was causing it, I think it might be the Meniere's. I am...
Question about pregnancy and CF.

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Hi, about twenty years ago, when my daughter was tested fo Cystic Fibrosis because of her small size. She was not quite 5 feet and weighted under 100 pounds and still is. She had her share of childhood diseases but nothing excessive. Well, the...
lighthedness and fatigue

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Hi, I am at wits ends. I was diagnosed with Meniere's several years ago. I never had the room go around but felt like I was on a boat. About a year later I was diagnosed with a form of muscular dystrophy. I alwyas seems to feel slightly...
energy level

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Hi, I do appreciate that muscular diseases can cause fatigue but I always seem to be tired and have a lack of energy. Sometimes I would just rather lay in bed watching lifetime movies on TV. I am still working at least about 4 days a week, leave...
escalators

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Hi, I had something happen to me yesterday, it has never happened before. I went to the mall with a friend, had no trouble going up the up escalator, no trouble getting off but than I was getting on the down escalator and the steps seem to be going...
one more question

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Hi, me again. I have noticed that when I am stepping up onto a curb, I find it much easier to step up with my left foot rather than my right. Actually I can step up with my right but find I seem to have less strength and that leg and have...
windy day

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Hi, several times when the wind was very strong I honestly felt as though I would fall. I walk without an aid but the wind made me feel very insecure. Anyone else feel this way.Marlene
exercise

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Hi, I have myotonic dystrophy 2 and wonder what type of exercise is best for me to do. I appreciate that exercise in excess can be harmful. I do however want to keep whatever muscle strength I have.Marlene
CPk

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Hi, my CPK has been running around 600. What kind of CPK do most people with MD have.
Living alone

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Hi, I am 65 years old, diagnosed several years ago with myotonic dystrophy 2and at this point my symptoms are not life altering. I am still working as a hygienist, getting tired, though and ready to retire. I have difficulty with stairs but live on...
specialty

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Hi, I have Myotonic Dystrophy 2 and am seeing a rhuematologist. Most people with muscular diseases are seeing nuerologists. Any suggestions. Thanks.Marlene
high dose flu shot

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I have myotonic dystrophy 2 and need my flu shot. I am 65. Anybody know of any contraindications to the high dose flu shot. You can also respond at Chaver123@aol.com.Marlene
lightheadedness

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Hi, I have been told I have Meniere's but it also has been confirmed that I have a form of muscular dystrophy (MD2) I constantly feel somewhat lightheaded and unstable. It can be a rather uncomfortable feeling. I feel relief when I lay down. I...
lightheadedness

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Hi, I seem to always have questions. I sometimes don't know how to explain how I feel but honestly, I am constantly lightheaded. I do no have the classic dizziness but whenever I am sitting or standing I feel lightheaded and unstable. My eyes...

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