InvisableMan

Activity

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  4th Covid Inoculation

  Posted by: InvisableMan

  Posted: 03/27/2022

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  3/27/22 - Just received a three day session of IVIG Infusion. Now scheduled to have the sessions every month for 6 months to see if they help. I had not heard that a 4th Covid Inoculation was recommened. I intend to consult my Neuromuscular Specialist in April when I see him about that. If anyone can REFER ME TO A WEB SOURCE concerning the 4th Inoculation I would appreciate the info.  My last prior to the sessions 3,23,24,25,2022, IVIG Infusion was in September of 2021. My symptoms had...

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  New Friend

  Posted by: InvisableMan

  Posted: 02/05/2022

  InvisableMan became friends with fihghter.

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  New Friend

  Posted by: InvisableMan

  Posted: 02/05/2022

  InvisableMan became friends with fihghter.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: InvisableMan

  Posted: 02/07/2022

  InvisableMan commented on the discussion Weakness in other parts of the body.

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  New Friend

  Posted by: InvisableMan

  Posted: 02/05/2022

  InvisableMan became friends with sseibert3.

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  New Friend

  Posted by: InvisableMan

  Posted: 02/05/2022

  InvisableMan became friends with sseibert3.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: InvisableMan

  Posted: 02/05/2022

  InvisableMan commented on the discussion Weakness in other parts of the body.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: InvisableMan

  Posted: 02/04/2022

  InvisableMan commented on the discussion Weakness in other parts of the body.

• Myasthenia Gravis
  

  Weakness in other parts of the body

  Posted by: InvisableMan

  Last Reply: InvisableMan 02/07/2022

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  Good Afternoon Folks. I was wondering if any of my fellow MG sufferes, have expierenced weakness in different parts of their body or general weakness after over exertion of,  as an example, their eyes after reading for an extended period of time, or mouth and tongue eating semi coarse food. But in the alternative this activity seemed to effect the strength in my my legs, hands or arms. Any observations about this would be appreciated. Thank you.   

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  Weekly journal 2/1/2022

  Posted by: InvisableMan

  Posted: 02/01/2022

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  I think that IVIG is starting to kick in. Feeling stronger, breathing better, numbness in hands and feet diminishing, vision is improving, mood is up. YEA!

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: InvisableMan

  Posted: 02/01/2022

  InvisableMan commented on the discussion We are going on a Cruise..

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  Weekly Journal Entry 1/26/2022

  Posted by: InvisableMan

  Posted: 01/26/2022

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  Doing pretty well today. My wife who is a Certified Homeopathic Clinician, referred me to a Homeopathic Practitioner in London, UK. After an exausting video interview with him which included my entire medical, behavioral, social and ocupational history, he recommended a Homeopathic Remedy that I started taking daily on 1/21/2022. I believe that it is positively effecting my MG symptoms. I believe,"Anything that may work is worth investigating and trying".

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  1/21/2022 New Journal Entry

  Posted by: InvisableMan

  Posted: 01/21/2022

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  Very weak today. arms, legs, neck heavy and unresponsive. Waiting for recent IVIG infusions to take effect. Just finished listening to an audio book about Hillary Pole a young brittish woman stricken with MG between 1962 and 1972. Very disheartening. Would recommend this book to anyone with MG. Thank God there have been some treatment improvements since this womans experience. 

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  1/15/2022 MG Journal Entry

  Posted by: InvisableMan

  Posted: 01/15/2022

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  Scheduled for 3 days outpatient IVIG infusions in NYC. Very concerned about exposure to Covid-19 and variants while staying in accomodations and receiving the treatment. Will take my food and everything else needed and shelter in Hotel/Guest House unless receiving treatment in the Infusion center. Have attempted to put off infusions by taking a high dose of Prednisone daily but it is not working well.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: InvisableMan

  Posted: 01/14/2022

  InvisableMan commented on the discussion New Musk-MG Dx.