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Advice needed, please. Visiting the emergency room

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Hello Everyone, I am having a problem and I don't know where else to go for advice I was diagnosed with PTC in 2011, my shunt was placed Feb. 2012 and after 2 revisions that year, I have had very little symptoms, besides the lovely ones caused by...
Physical Therapy for LP shunt pain?

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Hello, The pain from my LP shunt seems to have been getting worse. I just had a visit with my NS and she said its because of how my shunt lays. So we are going to try physical therapy. I had my first visit today and the physical therapist had no...
Eyesight Problems

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Hello Everyone, I had significant vision loss when I first became ill with pseudotumor cerebri. Ast my worst I was below 60 degrees, but I leveled out at 85 degrees after about 9 months. After getting a second opinion, a low vision specialist sent...
New to the Group

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Hello, I lost a significant amount of my peripheral vision due to pseudotumor cerebri and not being diagnosed in time, my last visual field read 85 degrees which is not good enough to drive. My vision is not going to improve and I am finding it hard...
LP Shunt and Back Pain

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Hello Everyone, I was diagnosed with pseudotumor cerebri two years ago and have had a shunt for almost a year and a half. I did lose quite a bit of my peripheral vision. After two revisions my shunt is controlling my symptoms, although it did cause...
Meal Replacement Diets?? I am new!

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Hello. I am new to the group. I was diagnosed with pseudotumor cerebri two years ago and my doctors have been on me to lose weight but I have been struggling with this. Recently, I am back to being symptomatic again because I have gained some...
Meal Replacement Diets??

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My neuro-ophthalmologist wants me to lose weight like yesterday. He referred me to a Weight Control Center at a hospital near me. They use meal replacements, and are multidisciplinary. There are dieticians, exercise physiologist, you go to group...
Chiari Malformations Anyone?

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Hello, I had a LP shunt placed about this time last year, since then, I have had two revisions. Now, apparently I have an acquired chiari malformation. My neurosurgeon acted like it was no big deal but now on top of the back pain from my shunt, my...
Advice Please! My Grandmother has DDD

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Hello. My grandmother was diagnosed with DDD after a slip and fall. She is over 80 and had to start using a walker, when before she was just fine. Her orthopedic surgeon said there is nothing to do but take pain pills. She is on a pain killer and...
LP Shunt Blues

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Last fall I was diagnosed with pseudotumor cerebri, long story short after being misdiagnosed three times, I ended up with damaged peripheral vision, two lumbar punctures and an lp shunt. I had the shunt put in early 2012, which was six weeks of...

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