mellywil
Status: If 1 of us can "hang in there" we all can!! Muah!! Luv to u all!!
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- anyone run a pretty constant low grade fever w/ a break in the fever every now & then?? I run 99.0-101.2 then it’ll break ever so often to my norm.. 97’s to low 98’s. I HAVE A GREAT RA but he says thats not really normal w/ fibro... no lupus...
- Hey, does anyone seem to get contant uti's. They did find an cyctic lesion on my left ovary but the blood work came back fine:)) we have to use strong antibiotics to knock them out & yes I drink lots of water & chow on plenty of yogurt!:)
- Hi! I am frustrarated & si k of docs, but my ?'s are has anyone's mestinon seemed to not do what it used to & MG seems to be worse along w/ the flares also. Wondering if I can take cellcept when I ca nnot take medrall nor prednisone!? Has anyone...
- Hey, I have had some concerns more lately but wanted to ask what symptom changes even if just i degrees changed along w/ any signs that is a look out for might be x for more help of cellcept. I can not take prednisone, very allergic but have to take...
- I hope some on here will remember me, its been close to a year!Bottom line is I have been taking care of my other 2 sick children along w/ helping my other 2 for this year gone by. In that process searching for the concrete dx of MG or not. I had...
- Hey everybody I feel like a jack in the box on the group; here now, gone now, here now... Yardage yada-yada. How is everyone holding up? ??? Guess I'd know if I was on here more! I try, it is 2:45a.m & I'm here now- lolWell u all know they got...
- My wife has a lot of stress right now -- father who had heart attack and our daughter in hospital. My wife woke up this morning shaking and with pain in her right arm. Could not move it at all. Very painful to touch. Gave "rescue" Mestinon and she...
- Hey, I so miss all u, every time I have to be off to care for me or my kids!I so would rather be here like I used too:))My doc rx'd me a wheelchair :-0 I so wasn't expecting that. I said no, what will my kids say & how will it make them feel?!? 2...
- Hey you guys, miss ya'll but have been in & out of H w/ my daughter.She is having a EMG & is still in H but should she take her prednisone before the test or after, I know it can make a difference on a truer outcome & the H & lab seem not to have a...
- Hey, I know there is debates in the med field on MG & pain. I know Mestinon can help &/or have the side effect of muscle pain. My question is does anyone suffer in pain to a level 10 or even above w/ their leg muscles? Mestinon does help it some,...
- Hey everybody, yes I have been on here since March & have done like most, good & bad days. But after my H stay & my trial to see if I was better, I went to TennMark's neuro, he put me back on my orginal docs script of 120-180mg,s a day. I had a...
- Hey, as many of us for several reasons have tried to learn our MG or even test our dx's, I wonder if when we lower or go off our Mestinon dosage, can it possible make it worse when we see it is not time to lower or get off it? We were all concerned...
- Hey everybody. Yep we r still alive here! My postings are probably going to be sporadic as they have been for a bit. Trying so hard to get my daughter(Maria) into an RA, even our doc is calling the offices. She is on 50 mg of prednisone,...
- Love everybody & miss everybody here!!! Sooo wish I was going to Atlanta but I'd need a nursing aid w/ me & just too hard to stomach that at age 43:( plus this "flare season" has not left found the bottom of the Mississippi River yet;( lolI am now...
- Hey, we ate all ready for a good long break, let's all strive for that in all positive ways we can muster!! Deal? Good!! John Matthew had a verrry challenging day today & Maria! Mama plum wore out, I haven't had time to check but I don't know if...