Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hey everybody I feel like a jack in the box on the group; here now, gone now, here now... Yardage yada-yada.
How is everyone holding up? ??? Guess I'd know if I was on here more! I try, it is 2:45a.m & I'm here now- lol
Well u all know they got me a wheelchair, NOW a walker;-(
I have gone from ehh-ok to wow what stage of MG am I in now!!!
Even w/ mestinon I can hardly get out of bad, a few times my hubby's had to pick me up & wheeled me thru the house or to the restroom!
Anybody else like that , because I have never had that much of no strength!!
We are going to our muscular neuro this Wed. a.m. due to how rapid, I mean in 7-10 days rapidly down!
Hope it's just a flare and not another permanent change in my MG nor something on top of that!
Anybody heard or dealt w/ this subject: Parkinson's over MG?
I have done research on I-net some interesting reads
I think I'll try to sleep some! Good luck on that one :))
X & o's MeLisa
How is everyone holding up? ??? Guess I'd know if I was on here more! I try, it is 2:45a.m & I'm here now- lol
Well u all know they got me a wheelchair, NOW a walker;-(
I have gone from ehh-ok to wow what stage of MG am I in now!!!
Even w/ mestinon I can hardly get out of bad, a few times my hubby's had to pick me up & wheeled me thru the house or to the restroom!
Anybody else like that , because I have never had that much of no strength!!
We are going to our muscular neuro this Wed. a.m. due to how rapid, I mean in 7-10 days rapidly down!
Hope it's just a flare and not another permanent change in my MG nor something on top of that!
Anybody heard or dealt w/ this subject: Parkinson's over MG?
I have done research on I-net some interesting reads
I think I'll try to sleep some! Good luck on that one :))
X & o's MeLisa
Doesn't sound like any Parkinson's that I have been acquainted with., much more like a flare that needs to be dealt with ASAP. I lnow you have had to escape from the hospital in the past, but you need TREATMENT, Sorry for the capitals, but I am yelling. Have you found that NM specialist to sort things out. I know you have all sorts of other concerns, but you are much closer to Nashville than I am and I know that program is good. Just concerned that your problems are so overshadowed by the rest of day to day crisis that you are not getting the help you need. A wheelchair is fine for sitting, but better to be walking and breathing. Big hugs from here, we have missed keeping up with you, so if totally inappropriate, I apologize. b
Parkinson's is somewhat difficult to diagnose. My sister-in-law has parkinsons and my father had it. They went through many tests but in the end the diagnosis was how they responded to sinemet (the medicine used to treat it). If it helped them, they it was parkinsons.
Good Luck
Good luck...
Annette