Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hey, I so miss all u, every time I have to be off to care for me or my kids!
I so would rather be here like I used too:))
My doc rx'd me a wheelchair :-0 I so wasn't expecting that. I said no, what will my kids say & how will it make them feel?!? 2 are sick 2 are healthy, they will all have so many things going through their mind!
My doc said only use it for when it's really bad just give it a try, your body has/is going through so much w/ your daughter & your own health & we are so greatful your son has only had a few mini flares. Use it when you want to go to your oldest sons basketball games, you can maybe go shopping now, look you've been in a hurricane for so long, so try this as needed for energy conservation, it will also help your swelling 'cuz your heart issues per your cardiologist. So I'm only going to give it a try, better than being in H again, but only a try!!!! He made it light weight but manual so I can use my arms if I want or someone stroll me.
As far as Mu daughter we are home but still battling so much pain & she has some bones due to Severe Rreactive RA, RA, or some form CTD,
We have seen several docs even after the 6 days in H, boy you can get tired but still keep going:)). Just wanted to let my DS family know:)
Need to write more on her & the in & out but time to rest a bit & she's needing us a bit now, thx luv u all, MeL (Mellywil)
I so would rather be here like I used too:))
My doc rx'd me a wheelchair :-0 I so wasn't expecting that. I said no, what will my kids say & how will it make them feel?!? 2 are sick 2 are healthy, they will all have so many things going through their mind!
My doc said only use it for when it's really bad just give it a try, your body has/is going through so much w/ your daughter & your own health & we are so greatful your son has only had a few mini flares. Use it when you want to go to your oldest sons basketball games, you can maybe go shopping now, look you've been in a hurricane for so long, so try this as needed for energy conservation, it will also help your swelling 'cuz your heart issues per your cardiologist. So I'm only going to give it a try, better than being in H again, but only a try!!!! He made it light weight but manual so I can use my arms if I want or someone stroll me.
As far as Mu daughter we are home but still battling so much pain & she has some bones due to Severe Rreactive RA, RA, or some form CTD,
We have seen several docs even after the 6 days in H, boy you can get tired but still keep going:)). Just wanted to let my DS family know:)
Need to write more on her & the in & out but time to rest a bit & she's needing us a bit now, thx luv u all, MeL (Mellywil)
Be well,
Be sure it is narrow enough to fit through the doors and you are right not to become too dependent if you don't need it and willing to use it if you do--based on my Dad's experince. He was getting worn out and falling and then when he eventually caved in, and sat in it, didn't get out. You will have more stimulus!
Big hugs. b.
.I must admit I enjoy "walking" on the paths in the woods with my family again. It is quite humbling and I get alot of looks of "really,? you need a wheelchair?" to "oh you poor thing!" Guess it doesn't help when I get out and push it for a few minutes to get some excercise.
Iam looking forward to enjoying other outings to museums, the zoo etc. and not feeling so worn out when we get home so I can do other things with family, like fix a meal or play games or even just talk.
Downside-- I do feel more of a bother to family and the wheelchair takes up alot of space in car...wish we could afford a roomier car. Good luck to you hope it helps!.
I tried it out, and it was quite enjoyable to use. We found it at a very reasonable price, used, on craigslist. It is being passed around in the neighborhood now as different folks have need for it. My 28 year old nephew fell off a roofing job breaking both ankles and used it for a few months and showed me he could do "wheelies" with it!
Go for it keep your ability to range widely through our world!