Zappy1

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Husband recently diagnosed

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My husband has been recently diagnosed with pancreatic cancer. The doctors say it is stage 2. The tumor is in the center of the pancreas and about the size of a golf ball. We met with the surgeon yesterday and he says their plan of action is to do...
Full blown mess!

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I was diagnosed in 2014 with HHC. Shortly after, I had several phlebs to lower my levels. I had went about18 years without a menstrual cycle prior to starting the phlebs. After the initial series of phlebs, I started my cycles again. They have...
On maintenance and very confused

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I was diagnosed with HH in Oct 2014 thru genetic testing. After about 5 phlebotomies, my ferritin level dropped from 524 to 78.7 and continued to drop on its own to 47.0. A test a few weeks later showed my level moved back up to 50.3. 3 months...
Good News! Possibly a pill for HH

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I just ran across this great article. http://newsroom.ucla.edu/releases/iron-overload-disease-causes-rapid-growth-of-potentially-deadly-bacteria-ucla-study-finds
Thank You!

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I just wanted to say thank you for all of the advice you all have given me and the links to research HH further. I had my follow up appt today with the dr. My latest bloodwork showed my ferritin at 58! She is putting me on maintenance now. We will...
Ferritin Levels Increasing

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I was diagnosed last month with hereditary hemochromatosis. At that time, my ferritin level was at 449.7. They scheduled me for bi-weekly phlebotomies. I had one phlebotomy and tested the following week. The ferritin level is now at 524 with new...

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Husband recently diagnosed

Full blown mess!

On maintenance and very confused

Good News! Possibly a pill for HH

Thank You!

Ferritin Levels Increasing