Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I declare Wednesday the day to vent our gripe of the week. Make it even better if you can add a funny story to it.
This week:
Invisible illness - because other's cannot see what is wrong with you they jump to their own conclusions or say stupid things.
I have 2:
1.
Me: I have a neuro-muscular disease and the signal from my brain doesn't always reach the muscle.
Them: Have you tried juicing?
2.
Me: (Riding a scootie in stores etc,) Hi. Just browsing.
Them: It'll be great when your foot gets better you won't need that scootie and cane anymore!
Me: (Looks around for another person with cane and scootie.) What foot injury?!
Kimber
This week:
Invisible illness - because other's cannot see what is wrong with you they jump to their own conclusions or say stupid things.
I have 2:
1.
Me: I have a neuro-muscular disease and the signal from my brain doesn't always reach the muscle.
Them: Have you tried juicing?
2.
Me: (Riding a scootie in stores etc,) Hi. Just browsing.
Them: It'll be great when your foot gets better you won't need that scootie and cane anymore!
Me: (Looks around for another person with cane and scootie.) What foot injury?!
Kimber
Mine:
you look great- you must be better! Or ,
Your muscles need to build up-- try squats. What?
Be well,
You should exercise more!
"Thanks, but He is still punishing me for my sins."
MG is a physical disease brought about by an imperfect and evolving immune system, and folks who get should not try to avoid natural selection in action. Who the heck are we that we think we are so important and valuable that we deserve to be an exception to nature's effort to toss the bad genes? We didn't do something wrong to get it; we didn't deserve it, but in a world ruled by the survival of the fittest, we are losers.
We are a burden on the medical system, insisting on getting outrageously expensive drugs and treatments and endless consumption of medical resources in our pathetic attempts to be "normal." Our lives are worth nothing in the billions on earth--and the excessive spending on our health likely condemns a few thousand infants in the third world to death each month.
We should just die and decreases the surplus population as Ebenezer Scrooge said.
Willy S. said "Life's but a walking shadow, a poor player, that struts and frets his hour upon the stage, and then is heard no more; it is a tale told by an idiot, full of sound and fury, signifying nothing. "
(Might be today the prednisone withdrawal is in a depressive mode ;-)
You're just tired it's not that bad.
Doctor:
Its all psychosomatic, your tests were negative
Me:
Where is that test to prove that this is all psychosomatic then? Id like to take it now in your office!!!
***********
Me:
After taking these tablets I have problems to breathe, am choking on my own spit and get food stuck in the esophagus
Doctor:
Oh that can happen to anyone!
***********
Doctor:
Its about your own will power and fitness level
Me:
Oh! So I am willing my own spit to trickle into my lungs and if I lift some weights then all of that will stop then, right?
I see why others do. It is nuts, completely unpredictable and insane.
People really don't know what to do with those folks with an invisible illnesses that are in the in-between zone. Look fairly well but are really sick but not sick enough to constantly be in a hospital bed or in a wheelchair.
Someone asked me yesterday if I took vitamins..... :-) Barbel