claymom
Status: Symptoms coming back, but in a weird, different way. Just want to be able to continue functioning.
Mood:
Ok
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- I'm wondering if I might be having focal seizures. All my life, I have had episodes when my eyes suddenly stare straight ahead of their own volition. I can't move them or blink. My eyes feel "stuck" in a stare. I remain fully aware, and can even...
- Do any of you find the long-acting meds don't last as long for your teens as when they were younger? Have you run into more difficulty finding the right medication after your kid hit the teen years? Is this a common problem? My son was diagnosed at...
- Just a reminder to everyone out there to listen to your body! I was all gung ho into exercising, and trying to keep up with a workout buddy (not on intensity but on frequency). I also felt decent for a while, so was anxious to do all the things I...
- Hi all. Sorry I haven't been around lately. I've been on a major organization crusade in my house, and then took my son to FL for our annual visit to my family and Sanibel Island. Thank God for good drugs, or I wouldn't be able to still do this...
- Hi everyone. I've had UC for 9 years. I fortunately do not have a severe case, and once I got it under control it's been almost entirely controlled by Asacol. However, every doctor I see, even my therapist, says I should be taking probiotics to help...
- Hi guys. I'm reaching out with a warning regarding the low/no sodium diet we all pursue. When I was first diagnosed I was so intent on fighting the disease I cut my sodium intake to almost nothing. Turns out it didn't really help me that much. I...
- Hi guys. Just wanted to share my weekend experience with you. As many of you know, my MD symptoms are triggered wildly by pollen. Our pollen levels here in Tucson have been sky high this month. Which means I've spend most of the month cooped up...
- I don't think my son responds well to the long acting versions of any of the meds (we've tried them all). He's on Focalin XR 20 mg now. Which is just a form of Ritalin, long acting. We see that it takes an hour to start working, and when he comes...
- I'm wondering how many of you experience pain in your affected ear? It's not supposed to be a symptom of MD, but I've found over the last year that I'm having occasional sharp pains in my affected ear. Anyone else experience this? Any comments from...
- Spoiler alert...if you're not in the mood for whining, don't read any further! I'm just so disappointed that after making it on my CA trip without any real trouble, and after having such a great May, that yesterday vertigo hit full force all day. I...
- I flew back from my trip to CA yesterday, and I'm thrilled to say I had no problems on the trip. I did use my valium on the plane of course, and also those days we did a lot of driving. Bottom line...I managed the MD successfully! HOWEVER....the...
- Well, I'm being really brave and venturing out on another trip. I am flying to CA tomorrow to visit a friend. I'll be pre-dosed with valium, which usually gets me through the flight okay. I just hope the driving around once I get there doesn't...
- I successfully drove my son up to Phoenix this weekend for our annual end of year school trip to a water park. AND I stayed outside all day Sat and Sun, and then drove back home. WITH NO DIZZINESS!!! I didn't even feel "off". I've missed this trip...
- I have been fighting worsening symptoms for about two weeks now. Today I'm at the point where I'm not dizzy, I just feel a low level of what I call sickness. I know any stresses to my system right now will trigger dizziness. I had an appointment...
- Speaking of earplugs,years ago I tried the bright orange foam ear plugs from the drug store. One day my 8 year old son looked at me incredulously and said "Mom...is that a Cheeto in your ear?" I looked in the mirror and yeah, it looked exactly like...