AS1977
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- Hello,I have the opportunity to get a free FitBit activity monitor. Has anyone worn them? My concern is I have a programmable shunt that is not MRI safe. Can a FitBit change the pressure settings on my shunt, or is it safe to wear?Thanks!
- Hi,I had surgery in January and again in April due to cerebral spinal fluid pseudo-cyst. The surgeon has said everyone went well, and that I am recovering fine. My stomach is still swallon, my weight is still up, and I feel bloated pretty much all...
- Hi,I will be having my 16th surgery in three weeks. This will be my first surgery that will lead to a visible scar. My shunt is being cut and repositioned next to my ribs. I will have a scar on my collar bone. I have been told that spring and summer...
- I would love to hear from someone who has had a successful pregnancy after having multiple shunt revisions. I have recently had surgeries 14 and 15. Both of them involved my abdomen. I was originally misdiagnosed with an ovarian cyst and almost had...
- I am pissed off. I am taking a boxing class at the gym tomorrow because I need to find an outlet for my anger and I would love to hit a punching bag. I have had hydro. since birth. I have had 13 brain surgeries over the course of my life. The most...
- Does anyone have any experience with abdominal cerebrospinal fluid pseudocyst? I am pretty sure I have it, and this is a complication I have never heard of.My shunt was most recently replaced in March 2011. Over the past year I have gained five...
- I was told a few weeks ago that I have an ovarian cyst. When the surgeon opened me up this week my ovaries are fine, but I have a large sack of spinal fluid. He drained a gallon of fluid out. The cultures have come back and everything looks good. I...
- I have had hydro since birth. I have had a total of 13 brain surgeries over the course of my life. I am about to have my first non-hydro. surgery in two days and I am petrified. At least when I have shunt surgery I know what to expect afterwards. I...
- A hydrocephalus support group meeting will be held on Sunday, February 24, from 3-5 pm. at Children's Hospital, Waltham. The meeting will be held in conference room C. The address is 9 Hope Ave., Waltham.The group is for anyone looking to learn more...
- Let me start off by saying I feel great! I am pain free and completely recovered from my last bought with hydro. My most recent shunt revision was in March 2011. My problem is that the statistics regarding shunt problems and hydrocephalus are...
- I would like to wish everyone a healthy and happy new year!For those who are going through a tough hydro. time right now keep positive you will get through this. This time last year I was only a few days post-op. I was in pain, tired, and not...
- Hello,I am currently looking for work and I would love to work for an organization that either assists patients with hydrocephalus or is working for better treatments or a cure for hydrocephalus. Does anyone know of any companies that I can research...
- I just need to vent to people who understand what I am going through.I had a programmable shunt implanted in March. Due to this surgery a good chunk of hair was shaved off. Thankfully the shaved part is completely covered by my other hair. I have...
- I had a programmable shunt placed almost 2 weeks ago. I still have a headache. Somedays it is not that bad (3-4 on the pain scale). Yesterday it was at an 8. Should I be concerned? Or is it nornal for the headache to last this long.I have had this...
- Hello,I was diagnosed three years ago and have been in remission for about one year.I have had a headache for months. Has anyone else's Graves Disease caused a never ending headache?I had a blood test today and I am waiting for the results.