Lynet

Today will be very hard for me. My Mother is being taken to the same hospital where my darling spent so much time having treatment,and eventually died. She is being taken to the E.R. from her nursing...

may dear darling Domenic  passed away on Tuesday 11th of June he kept on fighting until his last breath .He will always remain in my heart .I pray that  I have the strength to continue without...

Today my D had 2 blood and 2plaetlets' his neutiphils  were 0 so I am concerned about infections. Will be seeing his  Dr on Monday so will wait and see what he is thinking.    

We are now at some kind of hump in the road, My D is now needing extra blood ans well as extra platelets. His last results were 66 Hb, WCC 1, Plat 3, Neut. .1 and his report says blood film is...

It is already more than 2 years since Domenic started transfusions,now he needs to have 2 blood and 2 platelets weekly. He has been having very low blood counts for the last month,but we are still...

Last Monday D had a brain ct,to discover more about his continuing headaches. The results showed a mass in his head coming from his sinus cavity. He was admitted to hospital for surgery,and was found...

today my D is having 2 bloods only,not needing platelets today his last blood r esults showed improved platelet levels, and his energy levels have improved on the 14th his hb was 97 wcc 2.2 platelets...

Unfortunately Dwas not accepted into the trial mds4. We were led to believe that he had but his bmb did not show enough information for him to be on the trial.However he is having vidasa and has just...

Finally we are moving. My D has been accepted to be included in the MDS4 trial. Last Monday he had a bmb and bloods,his condition is such that transfusion of blood and platelets together with...

Lately we have heard that the aust.gov. has approved vidasa for use under the PBS and we became hopeful that this would be our next course of treatment.However my Domenic condition has worsened.Last...

Today my husband is again having 2 blood, his level was only 80 on monday so this fortnight he is having 2. The pain in his legs has worsened and the bruising is a little worse, but his spirits are...

Today my husband is again having 2 blood, his level was only 80 on monday so this fortnight he is having 2. The pain in his legs has worsened and the bruising is a little worse, but his spirits are...

Chritmas has come and gone,the new year has come,without contact with my son. Hoping this year will bring with it what we are all striving to achieve. Sending to all best wishes in the hope that...

Today Ifeel much better ,nothing much has changed for me but Ibelieve,today that while there is life there is hope, and so Ijust have to keep going on and hoping and praying that after xmas and the...

Hello out there,I have just found this support group. I feel sad today my life is very hard and has been for a long time. The problem with my son has been happening for many years. He wants no...