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- I had surgery in September, 2011 to remove a macroadenoma that was pressing on carotid artery.......surgery went as well, except for a sodium crash which landed me in intensive care for five days....post surgery my scores have slowly gone back to...
- Wow! My neurosurgeon just called and told me that I do not have a new tumor!!! The highly paid radiologist who read my mri read it completely wrong!!!!! My neuro said he spends about 25% of his time correcting misreads of these various...
- Greetings, fellow acro travelers..... I feel like Arnold S.,,,,,im baaaacckkkkk..... I guess you really cant stay away from this infernal monster.... I just had my two year followup mri (surgery was 9/2011), and it came back positive for a...
- Hello to all, I am writing for my son, age 26, who is struggling with a mental illness. He has received differing diagnoses, from prodromal schizophrenia, to major depressive disorder, bipolar, schizo affective disorder and possible borderline...
- Greetings! I am a visitor from another group, Acromegaly, which i have. I am writing about my son, who has schizophrenia or schizoaffective disorder or bipolar with schizo features. He is on abilify and lexapro, but he is so tired and fatigued that...
- Hi to all, I discovered this blogsite by accident, I am a member of the acromegaly forum... I am writing to alert all of you to the hazards of a cosecreting tumor; that is a tumor that secretes excess prolactin, but ALSO excess hgh or other...
- Hi to all! I just returned from my 6 month post surgery check up....and i received very encouraging news! My IGF-1 is down to 234 (it had been greater than 300 three months ago and the doctors were trying to force me to have radiation!) My...
- Merry Xmas, Happy Holidays and early best wishes for a fabulous 2012 to all of my friends at Daily Support! Lets stop for a moment and take time to really appreciate everything good about our lives....all of the love and support we have received...
- The drama continues......two months post surgery i do my testing: Result of ogtt hgh testing: average pre-glucose hgh: 3.5; nadir post glucose hgh .1; Prolactin: 6; and IGF-1 40 (or 310)!!! I just got an email from my surgeon and endo saying they...
- Well, i am post surgery almost one month.....the sodium imbalance issue is resolved.....i am off hydrocortisone, and my body is producing its own cortisol and sodium....levels are good! The surgeon said i had a "little bit" of diabetes insipidus,...
- Wow.....i guess i jinxed my outcome a little by announcing to all how well i was doing....i am back at the hospital since friday....in intensive care. Turns out i was doing better till wednesday and then started feeling bad....mostly dizziness, gas,...
- Yes,I am in recovery from my surgery! It went so incredily well! My surgeon, Sr. Steven Sullivan from Univ of Michigan is very happy, he said i had the best possible outcome and he believes he took out all of the tumor material....It sounds crazy,...
- Greetings to All! Well, I have been out of touch for awhile.....a lot going on.....the sandostatin in the clinical trial stopped working (ps I still think the first drug was pasireotide and it was more effective than octreotide), so I finally...
- I am thinking about switching from Sandostatin LAR (Octreotide) to Somatuline Depot (Lanreotide). I am doing fairly well with the Sando but I would prefer to give the injections myself.....and avoid trips to the clinic...also I want to be able to...
- Speaking of igf-1 levels, does anyone know what the optimail range is for igf-1? I know it is age related..... It seems to vary from lab to lab and from doctor to doctor...... My original endo said for age 51 to 60 it was 70 to 290, but the doctor...