Henry9315

Activity

• Polycystic Kidney Disease (PKD)
  

  Discussion Comment

  Posted by: Henry9315

  Posted: 08/20/2018

  Henry9315 commented on the discussion Angry at parent for passing on PKD.

• Polycystic Kidney Disease (PKD)
  

  Discussion Comment

  Posted by: Henry9315

  Posted: 11/18/2016

  Henry9315 commented on the discussion New to Group.

• Polycystic Kidney Disease (PKD)
  

  Discussion Comment

  Posted by: Henry9315

  Posted: 11/11/2016

  Henry9315 commented on the discussion New to Group.

• Polycystic Kidney Disease (PKD)
  

  Discussion Comment

  Posted by: Henry9315

  Posted: 11/09/2016

  Henry9315 commented on the discussion New to Group.

• Polycystic Kidney Disease (PKD)
  

  Discussion Comment

  Posted by: Henry9315

  Posted: 11/09/2016

  Henry9315 commented on the discussion Positive News.

• Polycystic Kidney Disease (PKD)
  

  Discussion Comment

  Posted by: Henry9315

  Posted: 11/09/2016

  Henry9315 commented on the discussion Anyone on the Tolvaptan study?.

• Polycystic Kidney Disease (PKD)
  

  Discussion Like

  Posted by: Henry9315

  Posted: 10/27/2016

  Henry9315 liked the discussion Anyone on the Tolvaptan study?.

• Polycystic Kidney Disease (PKD)
  

  Discussion Like

  Posted by: Henry9315

  Posted: 10/27/2016

  Henry9315 liked the discussion Positive News.

• Polycystic Kidney Disease (PKD)
  

  Positive News

  Posted by: Henry9315

  Last Reply: Lib 01/21/2017

  8

  3

  I am pretty new on here and been reading the older posts. Someone said that the news of PKD is always so grim. It got me thinking.... Most people blog the "bad" stuff because they are looking for information. Well here is some hopeful info.Like the case of my dad. He found out about his PKD when I was told of mine. At the age of 62 he lost his kidney functions. He is now 81. PKD and Kidney failure is NOT the end of the world! He has been on dialysis for 19 plus years. And more good news is he...

• Polycystic Kidney Disease (PKD)
  

  Discussion Like

  Posted by: Henry9315

  Posted: 10/27/2016

  Henry9315 liked the discussion New to Group.

• Polycystic Kidney Disease (PKD)
  

  Discussion Comment

  Posted by: Henry9315

  Posted: 10/27/2016

  Henry9315 commented on the discussion New to Group.

• Polycystic Kidney Disease (PKD)
  

  Discussion Comment

  Posted by: Henry9315

  Posted: 10/25/2016

  Henry9315 commented on the discussion Anyone on the Tolvaptan study?.

• Polycystic Kidney Disease (PKD)
  

  Anyone on the Tolvaptan study?

  Posted by: Henry9315

  Last Reply: Henry9315 11/09/2016

  8

  1

  Would like to know if anyone else is on the study to compare notes.Thanks.

• Polycystic Kidney Disease (PKD)
  

  Discussion Comment

  Posted by: Henry9315

  Posted: 10/24/2016

  Henry9315 commented on the discussion New to Group.

• Polycystic Kidney Disease (PKD)
  

  New to Group

  Posted by: Henry9315

  Last Reply: Henry9315 11/18/2016

  12

  2

  I am a second generation PKD. Gene mutated with my father. It has been passed on to both my children. After knowing I was positive for the last 30 years I finally decided it was time to join a group because I found that the ordinary specialists doctors do not know the in’s and out’s of the disease.  I’ve had one specialist admit that I knew more about PKD than he did.  Hope to be a value to the site!