Vitiligo Support Group

Vitiligo or leukoderma is a skin disease that causes loss of pigment, resulting in irregular white patches of skin. There is some evidence suggesting it is caused by a combination of auto-immune, genetic and environmental factors. Half of vitiligo patients develop signs of the disorder before the age of 20, with patches of de-pigmented skin appearing on extremities. Share...

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Skin & Hair
/ Vitiligo Support Group

35 with vitiligo

deleted_user
deleted_user
Hello everyone. I am new to your support group and am so thankful I can reach out to others that are suffering with the same ailment. I have had vitiligo for about 2 years now. It started out very slow but seems to be progressing quickly. I have been prescribed chemical ointments for the white patches on my hands. This proves to be difficult considering the amount of times I wash my hands a day. I have heard that extra virgin coconut oil works on repigmenting the patches. Does anyone know if this is true? I also noticed small white patches between my chin and cheek area on my face. This has made me feel really anxious about finding a remedy that works. Can anyone help? Thanks so much.
Olivia
mightymo121646
mightymo121646
ask your dermatologist about eximer laser , it works as long as you still have pigment, i used protopic it seemed to work but very slowly, then i was changed to something else,if you are interested in natural remedies ,go to www.recolour.com not sure i spelled it right.
janiecf
janiecf
Interesting Oliva, I just have tried so many things and at 55 not sure how this will. work. Can you get in the US? Can u use real sun?
I am happy for you experience.
Janie
jada1858
jada1858
OMG OMG I really can't believe there's a support group!!!
deleted_user
deleted_user
Olivia,

I'm in a similar situation. I'm 32 and have had small patches of vitiligo for the past 4 years. During the past spring/summer it spread to areas on my face. I'm also real anxious about it.

I use Protopic, which has worked on a smaller spot, but it has not worked on my bigger patch. I'm also doing laser treatments with some success, but it seems like it's only a cover up for the underlying problem.

I'm looking into some supplements and if I find anyhting that works, I'll let you know.

Ryan
deleted_user
deleted_user
I seem to be the oldest in this group - 56 - and was only diagnosed about 3 years ago with vitiligo. So far my face has not been affected, but my lower arms and my hands, as well as my feet and ankles are really mottled. It is frustrating as most of the clothing for sale has 3/4 sleeves which leaves me feeling very exposed. I just wanted to say I appreciate a support group for this problem. It is nice to not feel alone.
deleted_user
deleted_user
Hi Olivia,

I know you posted this a few years back, but I wanted to know if you began using coconut oil for your vitiligo. My 4 year old daughter was diagnosed at 2.5 years old. She only has it on one eye with a few white lashes. I have her on a mostly gluten free diet and try to have her eat lots of non-processed foods. I began rubbing aloe vera on her eye at the beginning of this year, but it seemed to only irritate her eye. In April I began rubbing extra virgin coconut oil and in June she began to have a noticeable repigmentation are in her eye. I'm continuing to use the coconut oil, but wanted to know if you tried this on yourself and if you had any success.
antisense
antisense
I am new to this group. I tried some of the cocoanut oil based remedies, Vitiligo green and vitiligo organic. Not impressed. Skin pealing off, lacerations and reddening of the skin made it unbearable. Stopped it, plain cocoanut oil is of course a good anti inflammatory oil. Dont know whether it helps.
If any of you have had success with it, I would like to know.
I recently started xtrac amd protopic for the face.,too early to tell. I am hopeful.
Best luck Olivia and to all of you.
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