Turner Syndrome Support Group

Turner syndrome encompasses a number of chromosomal abnormalities, of which monosomy X, is the most common. It occurs in 1 out of every 2,500 female births. Instead of the normal XX sex chromosomes for a female, only one X chromosome is present and fully functional. In Turner syndrome, female sexual characteristics are present but underdeveloped.

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  • loristone

    State disability for Turner Syndrome patients

    Hi I am a 42 year old with Turner Syndrome , lately I have been having a lot of health problems that go along with Turners . I was wondering if any of you got Permant disablility for being a condition that you are born with and the learning disability that goes along with it. Thank you
  • storyg


    I know everyone on here is probably struggling trying to figure this out at some point in their life. My question is besides adoption what other ways are there to have a child? I am 19 years old and love children so much. I have always dreamt of the day of having my own. It doesn't look like that's in the future for me though. What else can I one do to have a child? I think about this 24/7 it's...
  • shortcake

    Embryo adoption

    Hi. I just joined this group. I am 41 and have Turners. My husband and I after sixteen years have a little boy who is 2. We went through embryo adoption.  If you want to know more info about the clinic we went or anything else please let me know.
  • hamiltonk


    Hi, i was diagnosed with turner syndrome at the age of six (i am now 29) i have been with my husband for eight years, we have recently started trying to get funding for ivf which is proving difficult, does anyone know anyone who got funding, or actually became pregnant through ivf, as i'm not sure weather to keep fighting for funding or go private x
  • Hello.  For those of you with Turner's I was wondering what your relationships have been like and how much success you have had with them.  I am 34 and have never been in a real relationship.  I try not to be too hard on myself about it.  There have been several guys I have been interested in but they never happened for different reasons.  (One was married, one was way too young and had a...
  • TrueAngel

    New To This

    Hi everyone, I'm 25 years old, female, diagnosed with TS from birth and have came through the host of challenges that brought with it. Could really use some support at the minute and would like to chat with fellow TS ladies
  • bfofts

    Lack of affection in a relationship

    Hi, first off, I hope I don't offend anyone. I don't have Turner Syndrome myself but my girlfriend does and I have no idea where to look for advice. We have dated on and off for about a year but in November we committed to being boyfriend and girlfriend. We are both 20 btw. There's so many good things about our relationship but one major problem (mostly for myself) is the lack of affection and...
  • Tsgrl1

    In Search Of

    I am a 39yr old woman w TS from Roanoke, Va. My hope is to find someone local w Turner's Syndrome that I can connect and hang out w in the hope that we can share our experiences w Turner's and be a support system for one another. You can email me at shrttch@aol.com. Thank you for your time and attention. Hope to hear from someone soon.Nicole Light
  • Emilyspins97

    I decided to give this a try?

    So, I'm 18 years old, and was just diagnosed with TS about two months ago. It was definitely a pretty big shock. I'm probably going to be rambling, but if you read it all, some advice or encouragements would be really awesome. I found out about the TS diagnosis about two months ago, and everything seems to have changed. My personal life has been sort of a mess here lately as well. Once I found...
  • Charlotte7598

    Feeling REALLY depressed - Please respond...

    Hi all, I posted here once before a year or two back but I felt I needed to do it again. I don't have anyone in my life who understands my problems so this is the closest I've got. Beware: ramblings of an emotional teenager.I'm sure this isn't a new topic, but it's the infertility that's been killing me lately, even at only 17 years old. Everyone tells me I can always adopt, etc etc I'm sure you...
  • loristone

    Muscle week ness

    Hi I am new to this board. I have Turner Syndrome and for about over a year I have been having leg stiffness and been diagnosed with muscle weekness in both my legs and left hand. After a ton of test and visit to a Neurologist and a Sprots Medicine Dr. They say my stiffness is due to Turner Syndrome .I am 42 years old and I was wondering if any adult women may be having similar symptoms or should...
  • simplymarss


    Hi everyone,I wanted to ask what you guys do motivate yourselves to go about your day and achieve your goals. I know it can be hard and sometimes we don't feel like doing anything. what you guys do that helps you get that motivation and that positive mindset?
  • pamiam1218

    My Kingdom for Functioning Ovaries?

    Hi all, I'm 26 (almost 27!) and I was diagnosed with TS when I was 5 months old. I was fortunate enough to have strong support and good medical care, and although I have a heart defect, I have never had any serious medical complications from my TS. *knocks on wood*Lately, though, the infertility issue has been eating at me. I've known since I was a teenager that starting a family was going to...
  • whittywords

    Can we talk?

    Hi there beautiful ladies,I am looking to create a resource for women and teens with Turners (the kind of thing I wish I had when I was diagnosed) and I want to know what you think the most important issues to address are. Health concerns? Relationship issues? Infertility? Sex and body? Emotional well being? I really want to create a loving network that makes people feel safe and included. I...
  • mariezirklova

    Career / profession for women with TS

    Hello, I would like to ask other women with Turner Syndrome what profession or career path did you chose - or any other women with TS you might know. Thank you, Marie