I’m lucky and don’t really have any of the Healy issues. I did have a lot of ear infections growing up cause with turners your tubes don’t grow. So the fluid doesn’t drain. I took growth hormone to help me grow & then estrogen.
I’m not going to be able to have kids. Most women with turners have fertiltiy issues. But some can use IVF. Hope this helps.

katiebug - women with Turners can have a healthy baby via IVF with PGS NGS. You might want to read more on http://www.invictaclinics.com/pre-implantation-genetic-diagnosis-pgdpgs-ngs/pgs-ngs-360-panel-24-chromosomes/ Good luck

Hi Pinkflower,

First of all, congrats on your little one! I know it can be worrying finding out about Turner's, but hopefully what I'm about to say will put your mind at ease a little.

I am 36 and was diagnosed as Mosaic when I was 7. My mum did the whole 'why isn't she growing?" thing and had me tested as I was not having any other signs of being Turners. I imagine she felt exactly the same as you do now.

I had growth hormone injections from the time I was 7 until I was 14. FYI, I am now 148cm tall - 16cm over what I would have been without the GH. Firstly, no one would ever know about the Turner's if I didn't tell them. People just say "you're so tiny!" and never give it another thought. Interesting reading the comment above about ear infections though, as I had troublesome ears as a child as well.

If she's anything like me, your daughter will only find it hard in her teenage years, as she will be short and look younger than her classmates. Of course, this is a blessing for me now! If anything, Turner's will make her more self conscious than other teenagers, but she will get through that like I did.

Basically, she will go through a lot more emotionally than she will physically. I did not know I couldn't have kids until I was almost finished the GH, but I am glad about that. Kids in school do not understand, so I kept it to myself and continue to keep it to my inner circle to this day.

She will come to realise that a Turner's diagnosis does not limit her at all, only in later life. I do find it emotional that I can't have kids naturally at times, but the only way I can describe it is like taking a band aid off slowly - it is devastating finding it out in later life, but finding it out young is devastating in a different way.

All the best and I'm sure she will be a very happy girl in the end. Please feel free to comment back if you have any more questions.

CJade

Hi I am 15 years old and was diagnosed with tuner syderome and I have always looked and felt normal. Health has been good with surrportive doctors. My surggestions are to ask that your child goes under hormone replacement therapy and that they see a fertility specialist before it is too late. I am curently going into ovarian failure and in my reasearch turner gurls should receive fertility preservation ASAP before it’s too late. You will be absolutely fine xxx

Hi, my 11 year old daughter was just diagnosed last year. We were concerned that she wasn't as tall as her friends, that's when we found out why, so now we are treating her with Growth Hormones. If we had known this sooner, we would have started the GH much earlier. It's a good thing that you know sooner than later. I would recommend getting the best health insurance that you can, prior to her birth. We just happened to have great insurance, so almost everything is covered. We had no idea that she had any issue at all. She was born with a minor heart defect and now we discovered that she has hypothyroidism. She does look a little younger than her friends, but otherwise there is nothing else different about her