Trigeminal Neuralgia Support Group
Trigeminal neuralgia, or Tic Douloureux, is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. Trigeminal neuralgia is considered by many to be among the most painful of conditions.
I'm sorry your in pain too. I've tried to keep my house at the same temp all year round. It does help a little but October is very windy so when I step outside it's very painful.. My face swells gets hot and then the pain... Wishes for pain free days ahead :)
I didn't think of that but your right... When the weather is bad rain, snow and windy it kicks up too. Thanks for your reply :) Pain free days ahead.
hang in there i have a love/hate relationship with fall and winter and big fronts!
blessings
jady
I'm going to ask my Dr about Butran thank you... I have used my Lidocaine patches for my back on my face before... I didn't care at the time the pain was so bad I would have done anything. Hope your feeling well :)
I keep hearing people talk about how much they love the change of seasons and the fresh, crisp air - if only they knew. I used to like it as well, but now it just means more pain and less time outdoors.
Honeycrisp apples are available this time of year and they are my favorite. I have to be careful because biting into one and having the sweet, tart juices in my mouth (and chewing) can trigger the pain... Ugh!
Thanks for the tip on lidocaine cream! I'm going to ask my doctor.
I was thinking about the lidocaine gel for the inside of my mouth. I had two teeth pulled before I was diagnosed with ATN and at times my gum in that area just throbs.
My focus is to stay busy and as positive as possible.
The change in the weather definately creates flare ups with my condition. With a mild winter last year my TN was generally kept under control. However this year has been horrible! I've actually been on temporary disability since November because of my recent flare up. I am basically like a prisoner in my home. I am unable ot drive and I am terrified to go outside for fear that it will trigger an episode. I did have the opportunity to go to Florida for a week and had great weather and was almost symptom free during that time. I wish I could hop on an airplane and go to dessert island until around the middle of April. I cant take it much more! I hope you are feeling better and I hope for all of us that the warm weather comes soon. :)
However, there is a bright side because I've been pain free for almost a year now without any drugs. I urge you to Google "Barrow Neurological Institute" and learn as much as you can about Gamma Knife. Look for where this procedure is available near you. I checked into St Josephs Hospital and Medical Center in Phoenix, AZ at about 6am and was released at noon. After about 2 or 3 weeks the pain went away by about 70%. After another month or so the pain was totally gone. I have experienced no side effects what so ever.
The down side of this is the cost. With insurance it isn't bad at all, concidering the pain will be totally gone. Without insurance the rate was $176,800.00. But I have medicare insurance and my out of pocket cost was $550.00.