Hello, has anybody ever tried natural and herbal remedies for Trigeminal neuralgia? These remedies address the root cause of the condition. They work by decreasing the sensitivity of nerves and relieving the tingling and numbness. Some of the frequently used remedies are Niargim tablets, Myelin sheath sarcode and OMG magnesium. Please do a research on these products before using them.

not every one has addiction tendancies but if ever some day you are able to get off any drugs of this nature withdrawal symptoms may have to be dealt with. good to always do all of this with dr.
i started new treatment yesterday for atypcial tn. botox injections. botox was not originally designed for cosmetic reasons but for medical issues. maybe research this and see if pain management dr in your area has this available for you. seems like all of us stn patients need combination of treatments to find relief the key is finding the right combo.
hope this helps i have been working on my pain for nine yrs now and can say with the motor cortex implant meds and balancing triggers i do some better every year. thankgoodness the terrible flare ups are seldon now!but it has taken years of trial and errors
blessings for pain free days for you.
jady

My husband seems like he has been through all of this. First he had years of misdiagnosis as chronic migraines. Tried all the drug therapies and nothing worked. He then was diagnosised with ATN. He staryed with nerve block injections, that didn't really help. Then in 08 he had gamma knife, which didn't seem to help very much. Then he had balloon compression surgery, that helped for about 3 weeks. He also tried auccupuncture. Then he had a neuro stimulator implanted in his face under and over his right eye, with the battery pack in his chest. That was suppose to block the pain with electrical impulses. Because of the location in his face the wire wouldn't stay put and everytime he layed down the end of the wire would poke him in the corner of this right eye. It finally had to be removed. He now is getting botox injections. The first time seemed to work the best. The second, not so much. He's not sure he wants to do it again. The pain management doctor has taled about cyberknife. It's supposae to be different then gamma knife.
Right now he is on pain meds 24/7 with a feyntenal patch and narco.
He says he won't have any more surgeries. He tried all the surgeries because he was trying to stay working and save his
career.
All the doctors seem to be at a loss of what to do now.
I know this sounds like a pity party, but what do you do when the meds, natural remedies, surgeries don't work? He can't live on pain meds forever.

I also have ATN. I currently take oxycodone, Advil, Neurontin. I use to take 8 meds more along with these but have gotten myself off of them. Through journaling I found that a trigger (my biggest trigger) was SUGAR. All refined sugar along with natural sugar in fruits and veggies. Also Stevia. Has anybody else found that after the intake of sugar having an attack thereafter???? I also get pain in other areas of my body along with heat sensations (like I have a hot dryer blowing on my legs or arms. Only one extremity at a time). Other triggers are cold air blowing on my face and/or teeth. And I also get more pain my menstrual week. Does anybody else have similar triggers?? I have been dealing with this since 2010. I have had soooo many tests done its crazy. I am only 36 and no injury or cause for this ATN. It literally just started one day. snifles

Try a number of different meds before sugery because the surgery only works about 1/2 the time. Same as gamma knife. You can also try an injection block and radiofrequency stimulation, but that only works sometimes. My wife has had TN for 4 years and tried all those things and nothing has worked.
My hope is that some doctor will try Botox inj. and have success. Botox is the new frontier for TN treatment.

AFTER MCS SURGERY OLMOST SEVEN YRS AGO WHICH HELPED TREMENDOUSLY WITH ATYPICAL LEFT SIDED TN. I GOT RAMSEYS HUNT SYNDROME ON RT SIDE OF FACE. HA TWO NEURO DISEASES KIND OF UNHEARD OF....ANYWAYS AFTER INITIAL TREATMENT WAS LEFT WITH PHN PAIN. VERY MISERABLE~
HAVE HAD FIRST SERIES OF BOTOX INJECTIONS AND IT IS THE FIRST THING THAT HAS HELPED WITH THIS HORRIBLE SPASM I GET UNDER JAW LINE ON RIGHT SIDE OF FACE SINCE HAVING SHINGLES/BELL'S =RAMSEY HUNT SYNDROME.. AND NERVES DIDN'T HEAL RIGHT. HE ALSO INJECTED LEFT SIDE WHERE I HAVE ATYPCIAL TN. I WASNT SURE ALL THAT IS WAS DOING TIL IT WORE OFF!!! NOW I CANNOT WAIT FOR NEXT SERIES IN AUG. KEEP TRYING DIFFERENT THINGS EVERYONE THAN SHARE SO WE CAN HELP OTHERS. THESE NERVE CONDITIONS ARE SUCH A PROCESS....I AM TALKING TO FRIEND'S DAUGHTER WHO IS STRUGGLING WITH NERVE PAIN AFTER HORRIBLE BURNS DUE TO ACCIDENT. MAYBE IT WILL GIVE HER SOME RELIEF TOO!

BLESSINGS FOR PAIN FREE DAYS FOR US ALL.

I'm going to tell my story so it will be kind of long, but has a great end ing..promise;-). In 2011, at age 29, I noticed a sharp pain when I brushed my teeth. At the time, like many others, I assumed it was dental related. I went to the dentist and they found nothing wrong. As the weeks went on, the pain started happening when I talked, brushed, washed my face, clenched my teeth, slept, smiled, if the wind blew hard, etc. It was the WORST pain of my life. It felt like an electric shock going off in my the left side of my face by my jaw. Sometimes the pain would be just a quick stab, and other times the pain would vibrate through my face and all I could do was stop all motion and wait until it passed. I would even wake up out of my sleep sometimes from the pain if I accidentally turned on my left side. The pain would last for weeks then go away for a week and I thought it was over. BIG MISTAKE! It came back with a vengeance.
After many painful days and nights, I started looking up my symptoms on the internet (yeah for Google) and the same diagnosis kept coming up..Trigeminal Neuralgia. I was confused because although my symptoms matched, it said that this disease usually showed itself in older individuals and I was only 29. I made an appointment with my physician and after cruelly poking my facing with his finger after I told him my symptoms, he confirmed that although it was rare for my age, I had TN. He prescribed me a steroid prescription and sent me on my way. No further explanation. If I had not already researched this, I would have been lost. So I took the pills, and besides making me gain a couple pounds, the pain remained. By now, I had researched so much about TN, I felt like an expert. I called my physician and asked to be referred to a Neurologist.
Long story short on this part, Before the Neurologist saw me , he sent me to get MRI which was clean so no MS and he spent all of three minutes seeing me, told me I had TN, gave me a prescription for TEGRETOL, and sent me on my way. No further explanation about my disease. He failed to tell me that the Tegretol would make me CRAZY!!!!!!!!! I am a teacher and the Tegretol had me so nuts, some days I couldn't even function. I have a 2 1/2 yr old and between the Tegretol and pain, I'm sure I was a pain for my child.
The Tegretol did help a little but I could not see myself having to live the rest of my life on Tegretol. It would have been HELL!!! I had already researched Gamma Ray treatment and surgery to cut skull open and put something in between nerve and blood vessel. Both did not appeal to me.
THIS IS WHEN IT GETS GOOD!!! I live in Alabama and one day when I was researching, I saw that a Neurosurgeon in Birmingham, AL, Dr. Swaid N. Swaid does something called CYBERKNIFE TREATMENT. CYBERKNIFE is a non invasive radio surgery that is used to treat everything from cancerous and non cancerous tumors and TRIGEMINAL NEURALGIA!!! It beams a high dose of radiation to the area that precisely goes to the spot needed. I felt like this was my only hope. I called to make an appointment and luckily, a referral was not needed since my Dr. and Neurologist were of no help. I went to see Dr. Swaid the next month and he was the first Dr. to sit down and explain exactly what I had and the treatment options. Because of my age, he thought the brain surgery was better but I told him that I would rather do the Cyberknife. The brain surgery, besides be invasive, would make me have to take 2-3 weeks to recuperate while Cyberknife, I would go into treatment 1-5 times, depending on my xray of my nerves and lay on the table for 45 minutes and left the robot do it's thing and get up and be just fine. No pain, no cutting!
Made my appointment for Cyberknife, went in to talk to Radiologist who told me Cyberknife was just as good as the invasive method. He actually drew me a picture to describe what was going on in my face and told me that I was suffering from Trigeminal Neuralgia in my 3rd trigeminal nerve (the one by the lower jawline). After they looked at my
Xray, they decided I only needed one treatment. They made a mold of my face that is like a net they had to put on my face to keep me prefectly still. I laid on the table, listened to the music of my choice, and listened to the robotic arm buzz over my face for @ 40 minutes. Got up and was on my way. I was warned that the results would not be
immediate. The radiation slowly kills the nerve that is being affected. But month after month, sure enough, the pain became less and less. I went to see Dr. Swaid every 3 month for the next 9 months. He said by the 6th month, if the pain was gone, most likely it would be gone forever. The only side effect I have is that sometimes when I chew on that side of my face, because the nerve was killed, I get a little painless tightening in my jaw (like lock jaw) for a few seconds. I laugh because I'll take that anyday over TN and it only happens usually when I chew something really tough on that side
I have been pain free for about a year now but I'll never forget the worst part of my life. I encourage anyone dealing with TN TO DO YOUR RESEARCH and do what is best for you. If you have a Hospital that offers Cyberknife in your area, I encourage you to look into it. Never give up hope that you can't overcome this and know that there are others that have had to deal with this too....You DO NOT have to settle for taking medication for this disease for the rest of your life! RESEARCH, RESEARCH RESEARCH. God Bless!!!

i tried cymbalta and lyrica and all the antiseizure meds. But the most relief i have gotten is from gapapentin and amitripyline. I have also hhad some temporary relief with pain block.

I have what they call Atypical Odontalgia. I have been taking gabapentin 1200 mg a day divided into two doses. I recently was tapered down from it and am currently taking 200 mg twice a day. My doctor started me on Nortriptyline 50 mg at bedtime. I have only been on it for 3 weeks now. I have no relief at all so far and I am wondering if I should or if I need to wait it out for a few more weeks. Can you all reply and let me know how long it takes a med to "work"? I have relentless pain in my upper right gums ( where two teeth have been pulled). My tongue is constantly going there except when I wear this god awful retainer/nightguard they made me which is hideous!! I am so afraid that nothing will help me. I alos tried one dose of Cymbalta and had a really bad reaction for almost 30 hours until it cleared from my system. I am starting to think I should be on Amiltriptlyine, except they say Nortriptlyine is the same with less side effects. I am not so sure, as I read alot of people were helped by Amitriptyline. Any advice would be great, I have no Idea what I am doing and neither do my doctors!

Hi..TN is such a painful condition. My heart goes out to all of you!! My father suffered from it, was on tremedol and Xanax for one year... The side effects from all the pain meds affected his liver, and heart. Since he already had a heart condition, we just wanted to get him off the meds. The doctor suggested Gamma Knife..but we were skeptical about it. So we started looking into alternative therapies. From all the hours and hours of research and trial and error, the bestest solution out there, I truly believe is Accupuncture. He continued the treatment for a little more than a month, and literally is perfectly alright now and hasnt had any pain attacks since about 8 months. I had read this thread before, and at that time were looking into Natural meds for pain relief. Rosali22, thank you for telling us about Niargim. It truly was a blessing. It relieved his pain during the accu treatment, and from what i looked up, apparently it also helps in desensitizing and repairing the myaline sheath around the damaged nerve fibres. I would also recommend magnesium and Folic Acid supplements (To strengthen the nerves). God Bless you all, and hope you wake up one day to a pain-free life.

I have bilateral ATN affecting the bottom two branches. I have had a lot of success with Amitriptyline. Right now I am about 90% pain free.

Listening to everyone on here talking about MVD and other invasive procedures makes me very nervous. First of all it should be seen as a last resort. I have talked with many people with ATN that these procedures didn't work for them and even worse--it left them in MORE pain and caused more damage.

Atypical TN is actually better cured with natural/holistic treatments than surgery or Lyrica. Like Oldriska said, Facial massage and accupuncture are wayy more effective. Painkillers will only mask the pain until your condition becomes more severe and then the doc will mandate you into surgery.
I was diagnosed with ATN too...continued accupuncture till the pain completely subsided. My accupuncturist suggested me an ayurvedic med called Niargim (a herbal combnation)...it helps with the pain, slightly, but also helps repair your nerve tissue damage. I would look it up and research it, if I were you... Good Luck :)

I have had ATN since 1988. Those first few years were awful because I was given the choice of meds or surgery, Tegretol and Dilantin were what I was put on but they didn't really work until I was given a mild narcotic for something else. Even though the narcotic was mild (Tylenol #3) the docs still acted like I was a drug addict for needing it. I looked into all the other procedures except Cyberknife which sounds interesting, none of them sounded right for me. Fifty percent chance that it would help was not good enough to let someone mess around with the nerves leading to my face. What really helped me was chiropractic manipulation, Before this happened, I always thought chiropractors were quacks and could never see myself going to one, but man did that turn things around for me. I still take the three meds twice a day but my pain is under control now. Try tapering off the meds now and then, the pain is still there. I understand how many of you feel, all you want is relief, it takes a while to find what will work for you. I have a whole long list of meds and treatments too that didn't work.

Hello, I am a homeopathic consultant practicing for years. Believe me, I have had patients with similar complaints of facial pain as if electric rods are stabbing.. All that I have observed all through these years is that, herbs and homeopathic ingredients such as Bacopa monnieri, Hekla lava, Gamma-aminobutyric acid, ginkgo biloba, Devil's claw, spigelia in a combination are believed to strengthening your nerves and Myelin sheath, calm your nerves & prevent nerves from getting over-sensitive to external stimuli. We at Biogetica have a perfect combination of these herbs along with many other herbs & supplements that may help you!

I have been suffering with what doctors call Atypical Facial Pain for many many years. I recently saw,yet again, another neurologist who couldn't give a crap. I have been on every drug and a couple surgeries. Nothing works except narcotics which no doctor will even prescribe. New opioid laws in Florida say a patient can only get 3 days worth. Go ahead and treat me like a crazy drug addict. Mention pain and the doctors can't get me out of their offices fast enough. I don't even ask for opiates yet am treated as though I am. I'm done being let down by doctors. I've had a zillion MRI's, CT scans, x-rays, etc..
The only relief I get is from Medical Cannabis. My problem with that is that in order to get pain relief I have to use large doses of THC. Thus, I end up a zombie. But, pain free. Some may think that is very cool, but, believe me, it's not very fun. I cannot use it if I need to drive, make major decisions, do business, etc. I have 2 grandchildren and I will not watch them high. I just wish for pain relief. Call me crazy, but, I have gone to real dark places due to the horrific pain. I have nowhere else to go. Too many specialists and too much money already spent. I just hope you all can find a good life pain free.