Tinnitus, Deafness and Ear Problems Support Group
This group is for those coping with Tinnitus (ringing ears or ear noise), hearing loss, and all ear issues. Join to find support and get advice from others.
This group is for those coping with Tinnitus (ringing ears or ear noise), hearing loss, and all ear issues. Join to find support and get advice from others.
but Zeph has devoted his life to this unique machine.
Zeph got tinnitus in May 2007 after going to a nightclub. A common occurence and something that many people experience once or more in their lives. He has'nt devoted his life to it.
I also read his story about depression. I have read many stories about tinnitus and often a common thread arises and that is, at the time of tinnitus ocurring the person is experiening emotional problems such as depression/anxiety/sadness etc....
The tinnitus journey will be unique for all of us. Some will be fortunate and it will simply diminish and disappear after a period of time. I strongly suspect this is what happened to Zeph. IMO the deal with the scenar is just co-incidence. I have a problem with Zeph telling the world he cured tinnitus and I have a problem now that he declares his intent to make a living from people who are desperate to find a cure from their tinnitus nightmare. Not Nice!
greg
Well OzGreg, I should have said since Zeph's Tinnitus went
away or he cured himself. But really now, do we have to be that specific? Tinnitus reduction is our goal But since you're looking at this like it's a court trial, your witness...
eg: You don't want to communicate but you're posting a public message to me. You did not imply me when saying "naysayer and mean" but its well known we had an issue in the past and no one else had expressed doubt about Zeph before me. Please discontinue following my posts; there is no need to create drama where there is no problem. Your need to vent disguised as a constructive post is unneeded and unnecessary . No one is opposing communication on you.
I sent you a hug message last month and I'll ask again -- that you please not ostensibly assert, hint or imply "me" in a "you know who" fashion. If you have a comment directed at me please simply use my name. Thanks. Back to you, Zeph!
I have a problem with you saying that you CURED your tinnitus and I have a problem with you making money from those who are desperate to silence their tinnitus.
I also have a problem with you claiming that the scenar repairs hair cells as you are not an expert on tinnitus or a medical specialist and you have no idea of what is happening.
I also have a problem with desperate tinnitus sufferers spending $1000 or more on Ebay for scenars hoping for a cure because you are encouraging them to do so.
When there is an independant, double blinded controlled study of the effects on tinnitus using the scenar then it will confirm that you are right or I am wrong. Until then you have no proof that it works.
greg
I don't believe I am encouraging anybody to buy scenars, they can make up there own mind, I am not persuading them, just informing them.
How is a double blinded controlled study suitable? Surely this something which is suitable for pills, but how can you have a placebo electrostimulation? Also the signal needs to be tailored for each individuals needs, don't double blinded controlled study require the same influence each time?
I am informing all relevant organisations of the results when 6 peolpe have had their tinnitus significantly reduced.
I don't believe I am encouraging anybody to buy scenars, they can make up there own mind, I am not persuading them, just informing them.
How is a double blinded controlled study suitable? Surely this something which is suitable for pills, but how can you have a placebo electrostimulation? Also the signal needs to be tailored for each individuals needs, don't double blinded controlled study require the same influence each time?
I am informing all relevant organisations of the results when 6 peolpe have had their tinnitus significantly reduced
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Only birds have the ability to repair hair cells in the cochlea. Mammals including us do not have the ability to repair or regenerate hair cells.
You are encouraging desperate people to buy scenars. I only need to read some of the threads here to see this.
Incidentally, I have not heard of a single person other than yourself who claims a scenar cured their tinnitus, even the people that you treated personally.
A double blinded study would be a simple excercise. No doubt adjustments can be made to the scenar so that both the patient and the treater are unaware whether they are delivering a genuine dose or a sham dose.
Maybe the application of scenar in this way has changed this.
"You are encouraging desperate people to buy scenars. I only need to read some of the threads here to see this. "
You have decided to interpret what you read "as encouraging desperate people to buy scenars", because you do not believe in any of it, and you need to maintain this view point.
"Incidentally, I have not heard of a single person other than yourself who claims a scenar cured their tinnitus, even the people that you treated personally."
You made this statement, months ago when I had tried it on 2 people! Your statement implies that there have been many, this is untrue. I have given accounts of everybody I have treated personally which amounts to 4, 3 of which do not count for reasons I have explained, 1 of which has had improvement. I have more lined up and some have bought my treatment pack and are underway at the moment.
Your last comment regarding the double blinded study only reinforces to me how unsuitable this is. The only way a study can be done for this, is if many are given this treatment tailored to their needs, and results, positive and negative are compiled. A placebo stimulation is of no value because you need to feel it, if it is working. If you can't feel it, it isn't going to work, it is a simple as that. It is suitable for drugs, but not for this.
So, in general, are you saying that you would not belive any of it until you have seen the results of "double blinded studies". So, if many people started making claims of improvement, you wouldn't accept any of it. Perhaps you would think it was me in a different guise or someone I had paid? Do you trust information only from standard medical practices? Is there one fundamental thing that makes you think that electricity isn't the answer, or is just a gripe with me, because I am not a prof. I altered my claims after my initial joy, but nothing I have done and probably nothing I can do will satisfy you, you seem to have made your mind up 8 months ago. You have always been glib and dismissive and have influenced others away form this, despite information indicating that it can help.
I will now ask Jobo8080 to say something, but you can ignore it, because it won't be negative.
You made this statement, months ago when I had tried it on 2 people! Your statement implies that there have been many, this is untrue. I have given accounts of everybody I have treated personally which amounts to 4, 3 of which do not count for reasons I have explained, 1 of which has had improvement. I have more lined up and some have bought my treatment pack and are underway at the moment.
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No, I'm saying that you are the only person who has claimed 100% CURED by scenar. Not a single person who you treated or supervised was CURED and not a single person who purchased a scenar and tried it on themselves has reported a 100% CURE.
Maybe a Russian claims the scenar cured tinnitus? I guess it miraculously cures asthma, hearing loss, deafness and everything else.
You know what it's not your job or anyone elses for that matter to sit in judgement of what works and what doesn't. People are quite able to judge for themselves what they want to try and what they don't. I personally would go to a scenar practitioner before forking out the money to buy one, but that's just me. If people are willing to spend the money and give it a go then that's their decision. You've given your opinion, we all know now that you think it's a scam. Give it a rest now. This board is to help people not to continue arguing with someone because you don't agree. Personally, I'm sick of you guys who think you know it all and feel it's your job to keep telling us over and over again your opinions. Once is enough.
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Mairi
I know that it's not my job to sit in judgement of what works and what does'nt and maybe I should just say nothing when somebody claims they CURED tinnitus and intends making money off those who suffer from it. But I don't like seeing tinnitus sufferers who are desperate for relief throwing money down the drain.
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This board is to help people not to continue arguing with someone because you don't agree.
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Help in the form of knowledge and information helps people make rational decisions. I would hate to see some of the people here that I know from another board throw $1000's down the drain on something that won't work.