I think most people with Sjogren's have difficulty sleeping, but you sound as if you are having panic attacks as well.
I had bad reflux where the pain kept me awake. I take meds for that so no more pain there.
I sleep in a room by myself as I was keeping my husband awake. The room is very dark & quiet which really helps.
I have stopped drinking coffee as that made me restless. I have a decaf every now & then
I also ache a lot in bed so take Panadol Osteo before I go to bed. Try & get into a routine before you go to bed so your body knows it is sleep time!
I get up during the night if I am awake for more than thirty minutes & have a drink or look at a magazine & then go back to bed.
Even with all this I still need to seep during the day.
I have taken melatonin whichmade my sleep quality better. I am on a homeopathic remedy at the moment which I think is helping!
On the subject of digestion, I have gone dairy free as I was getting a lot of bloating & discomfort. It has really helped.
I hope you get some relief soon.

I take Ambien. I have had insomnia since early adulthood. I used to work on 2 or 3 hours of sleep. It was so awful. I am dependant on it now of course. I hate that but nothing else has worked for me. We need to sleep with this disease. Sleep is so healing for our bodies. Like nursea49 my daughter has luck with melatonin. Insomnia runs in my family.

PS I agree routine is really a good idea as well no coffee etc.

I get them too! But as soon as I say: Leave, in the name of Jesus, the panic attack and anxiety goes away before I can even finish the thought. Every time it happens, I think that thought. I don't know whether it is all about positive reconditioning...but I am having way less incidents. Hope it helps.

Have you tried Norvasc? I don't have high blood pressure but they use it for Raynauds. I feel 100% better using this stuff its a really low dosage.
My arms feel better, my fingers my feet and toes my anxiety has dimished , its crazy! I was mad as 7734 when he told me to try it and about a day later my raynauds felt literally 100% better. I have to keep an eye on my blood pressure its a shade lower but normal still.

Not sure you have raynauds but it is worth a shot for you its not an expensive med either. I had to wear long sleeve shirts to bed or my arms would burn and feel ICE cold. A/C does the same thing....now I feel a little tingle but my skin stays warm and again my anxiety is basically gone.
Remember this is a nerve based disease.

OH' I was mad as heck because I wish he had prescribed it a few yrs ago!

I too think you are also aving panic attacks. My gastro put me on prilosec twice a day. I take 1 at 10:00 AM and the other at 9:00PM, at that time I also take 2 muscle relaxers, pain med and my transplant anti'rejection meds. You need to make a doc appointment!! You may want to ask about Zanax, to sleep .I take 5 MG. Upping your prilosec to twice a day. You may also need sucrafate which coats the stomach lining and prevents ulcers. I take that also off and on, when needed. The best anti anxiety medication with no bad side effects would be chlorazepate. I too if I do wake in middle of night and don't fall right back to sleep get up and look at a mag or read a bit. Get a drink and then go back to bed and usually go to sleep then. But, with the zanax I sleep well and wake rested. Also, sleeping on your LEFT side will help the acid from coming back up.the body is built in such a way that it will stay down that way.Also try elevating your head till you get med to help.

Don't know if you are against taking meds, but when I came down with all my ailments, I was very anxious and couldn't sleep and had my heart racing. I have found zoloft wonderful at controling my anxiety and I have no side effects from it. I would highly suggest trying this to see if it helps you. I have been on it for years since it helps with menopause hot flashes, but for me it is a two fer because it also controls my anxiety and makes everything ok. Hope you will give it a try. It might be just what will give you your life back. It has given me mine.

also on zoloft, I started at 25 mg which is barely anything. That worked for me for a while. I am now on 50mg which is considered a normal dose. Sleep like a baby. No panic attacks. You take it once a day and you are done. It is an anxiety medication so it is just for what you are experiencing. And there is no worry of addition like some meds that help you sleep. It really might work for you like it has for me.

meant addiction, not addition. No worry of addiction on Zoloft

Thank you all for your advice. I have tried some melatonin but I think it makes my symptoms worse with Sjogrens. I dont drink caffeine and I am now on a candida control diet - no more grains and sugar to help with my stomach. I take prilosec 20 mg. ever other day since I think i was causing me to hurt more. I do have some xanax but I don't want to become too dependent on it. My rheumy prescribed Soma a muscle relaxer to help but I still wake up after a couple of hours. I try to follow a holistic regime since my body does not metabolize drugs very well. I actually do have Raynauds also but I am on digoxin for my SVT's and my blood pressure is already low. I have tried some anti-depressants (prozac, paxil, and cymbalta and I always get terrible side effects. Don't think I have tried zoloft. Is it a pill or capsule? I always need to break them in half. My cardiologist just put me on a halter monitor to see what is going on at night I pray all is well. I work full-time and it is getting harder and harder to make it through work the fatigue is awful. Feel like giving up sometimes.

Thank you all. It is so nice to have support of people who really understand. Don't really think my family and work folks get it.

Peace.

Mary

Another Holistic possibility...check your EMF values. They say never to sleep near anything electronic! It will give you anxiety.

zoloft is a tiny blue pill that you barely know you swallowed. It is a wonder drug for me. You might ask your rheumy about it or your GP.

Many of us have sleep issues. We need sleep to rest and heal. If we need something to aid in helping us sleep or feel calm. I take carisprodol (muscle relaxer- brand name Soma). If it wasn't for it I would be up and down all night. I wake up maybe once now. I don't average a lot of sleep hours per night but its enough. Good sleep hygiene too...same routines etc.

hello there
i do have aproblem with sleeping as well and stomach so im using mint root in hot cup of water that helped me i wish that will help u
good luck