Shingles Support Group
Herpes zoster, colloquially known as shingles, is the reactivation of varicella zoster virus, leading to a crop of painful blisters over the area of a dermatome. It occurs very rarely in children and adults, but its incidence is high in the elderly (over 60), as well as in any age group of immunocompromised patients.
deleted_user
hi all,
I am going to post this info in any shingles support groups I can find;
I had herpes zoster oticus [shingles in my ear], and my postherpetic neuralgia was severe. My GP prescribed me increasingly strong painkillers such as pure codeine, which did not help even slightly.
Once when the pain was really misery-making, I grabbed the affected ear and mangled it as hard as I could, twisting and crushing it every which way. The pain shot up and straight through 'the pain barrier', and then instantly vanished.
To date, the roughest possible massage is for me the only thing that can actually stop postherpetic neuralgia it in its tracks.
I hope this helps. I'd be very interested to hear of how it went for you...whether it could help with other affected areas of the body.
I am going to post this info in any shingles support groups I can find;
I had herpes zoster oticus [shingles in my ear], and my postherpetic neuralgia was severe. My GP prescribed me increasingly strong painkillers such as pure codeine, which did not help even slightly.
Once when the pain was really misery-making, I grabbed the affected ear and mangled it as hard as I could, twisting and crushing it every which way. The pain shot up and straight through 'the pain barrier', and then instantly vanished.
To date, the roughest possible massage is for me the only thing that can actually stop postherpetic neuralgia it in its tracks.
I hope this helps. I'd be very interested to hear of how it went for you...whether it could help with other affected areas of the body.
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My jolt to the nerves, on my forehead, is to use a stinging hot wash cloth that stops the sting-itch. Others swear by a jolt from a cold compress.
I wonder if we could shock ourselves with a little jolt of electricity. That might cause the damaged nerves to work right. Any suggestions? What could be used. I like to experiment.
"My take on this is that I'm replacing random faulty nerve impulses that are caught in some kind of positive feedback loop, with real ones arising out of real physical stimuli."... pretty much the same thinking as yours.
"This is useful information and follows up some recent advice we have had re allodynia. Allodynia is over-sensitivity of the area affected by the shingles pain, so that a person cannot even bear clothes/sheets against their skin. (Very difficult to deal with, you can imagine.) Apparently, scrubbing the over-sensitive area with a loofah (like your 'mangling') shoots the pain through the barrier too..."
The International Association for the Study of Pain put out a paper in 1999 that gets pretty technical. It is called "Is Post-Herpetic Neuralgia More than One Disorder?"
It claims that there may be three subtypes of PHN. I had to look up a lot of words in the paper. What it boiled down to in my mind was that the swelling of the nerves from shingles can destroy sensory nerves, partially injure the sensory nerves, or a combination of destruction and injury of sensory nerves.
What I wanted to say is that jolting nerves into working correctly was not theorized. It should be investigated, if it has not been already.
Interesting too that your mum and gran had it too. I don't know about my mum, but my grandmother had it, I recall.
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I have a problem with the itching all over my head and neck, and the only thing I've found that works at all is a small plastic fork. I gave up on itching because it does nothing for the itch (like a dry skin itch), so now I gently glide my hand over the area and it does the same as actually itching. When it gets really bad I take the small plastic fork and poke the areas that are itching. Works wonders.... temporarily.
Posted on 11/20/11, 04:39 pm
I'm on 1800mg of gaberpentin and 10/500mg of hydrocodone 4 times per day and by 6pm my pain is at the lowest and lasts until the next morning and then the cycle continues.
So it looks like applying a replacement, real sensation to an area affected by postherpetic neuralgia is working for people with either or both of pain and itching, both around the head and neck and the torso.
We might really be onto something.
I have the classic allodynia symptom where a light touch causes pain, but if you press down hard, the pain goes away temporarily, in the spot pressed. People sometimes give me funny looks, when they see me pushing on my forehead with one finger.
I gave the plastic fork trick a try last night instead of using the washcloth. I poked the tines around on my forehead to a point where it hurt a little but made no damage. You should have seen the funny look my wife gave me. For 30 seconds I thought I had made it worse. Then the burn-itch went away for the next few hours. It works! So, dsusr, your description of applying a real sensation as a replacement for the allodynia, is a good one.
I found a definition for allodynia that says it is pain when the stimulus must not be normally painful.
It appears, that this anti-allodynia stimulus is the opposite, a stimulus that must normally be painful. Or at least it must be irritating enough to counteract or "replace" the allodynia.
David's hairbrush is a shining example of this anti-allodynia stimulus.
If I try to do the radical ear-mangle when there's no postherpetic neuralgia there, it does hurt a somewhat- though nothing like the neuralgia of course either in character or intensity, Still, it reinforces for me that the sensation I give it has to be full-on. A gentle massage would only make the neuralgia pain shoot up without forcing it through the pain barrier to the nothing that's beyond.
That is a very nice and neat way to describe our fix, altering that definition for our purposes for an anti allodynia stimulus to be 'a stimulus that must normally be painful'.
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Eur J Pain. 2009 Oct;13(9):942-8. Epub 2008 Dec 30.
Homotopic stimulation can reduce the area of allodynia in patients with neuropathic pain.
Love-Jones SJ, Besson M, Steeds CE, Brook P, Chizh BA, Pickering AE.
Source
Pain Clinic, Bristol Royal Infirmary, Bristol, UK.
Abstract
Allodynia is a common, troublesome feature of neuropathic pain conditions. In a previous study of postherpetic neuralgia we observed that repeated tactile stimulation appeared to reduce the size of the area of allodynia in some patients. We have undertaken a pragmatic clinical study to characterise this phenomenon in neuropathic pain patients with a range of different aetiologies. Neuropathic pain patients with a discrete area of tactile allodynia were recruited (n=20). We assessed the sensitive area using punctate and dynamic tactile stimuli, and thermal quantitative sensory testing. On two separate testing visits, the patients had repeated (10x over 1 min) noxious heat or cotton bud strokes applied to the affected site or contralaterally. Tactile stimulation of the affected area evoked pain (median 7 NRS) and a reduction (>30%) in the area of allodynia in 9/18 patients (maximum -48+/-9%, after 20 min), although the intensity of allodynic pain was unchanged. This effect persisted for over 1h and was present the following day in all patients tested (n=5/5). No subjects showed an increase in area after allodynic stimulation. There was no change in heat pain threshold at a distant site following allodynic stimulation, suggesting no activation of diffuse noxious inhibitory control. Repeated thermal noxious stimulation (median NRS 7) could also elicit changes (>30%) in the area of allodynia in some patients (reductions in 7/20, increases in 3/20). Thus, we have found that a brief period of homotopic painful stimulation can reduce the area of allodynia in around half of patients with established neuropathic pains.
PMID:
19117776
[PubMed - indexed for MEDLINE]
It seems like a cautious study, where perhaps the stimulus hasn't been 'noxious' [:D] enough to effect a 100% reduction in both area and intensity.
What's happened with me is the 100%/100% jackpot for severe postherpetic neuralgia where rigorous stimulation makes the pain disappear completely. I'm still hoping some other folks will turn up to say that this works for them too.