Shingles Support Group
Herpes zoster, colloquially known as shingles, is the reactivation of varicella zoster virus, leading to a crop of painful blisters over the area of a dermatome. It occurs very rarely in children and adults, but its incidence is high in the elderly (over 60), as well as in any age group of immunocompromised patients.
twyliah
I am in my 7th month of shingles and they are very bad right now, on my face, shoulders, elbows, back, and butt. They are causing me a lot of pain. The doctor has put me on a constant dose of antivirals and an antibiotic because some of them are infected. I am really depressed. Does anyone have any information or advice for chronic shingles.
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blessings for you to recovery
hugs
I was just diagnosed with chronic shingles.
The jaw bone, the ear, and the cheek...affects my ability to eat.
Hope you are doing much better now!
hugs blessings for speedy recovery
Please keep in mind that your diet will have a profound impact on your bodies ability to fight this thing. I highly recommend lots of freshly squeezed vegetable juices, (carrot, kale, ginger), lots of fresh raw salads, cut way back on meat and dairy, greasy foods, fast foods, ice cream, potato chips, etc. . Eat lots of raw almonds and walnuts, organic hi omega eggs, take fish oil supplements - 800mg of EPA/DHA omega 3, which helps the cells, and skin to heal.
Without the nutritional foundation shingles will be much much more difficult to tackle.
If you are able to make proper dietary changes, and stick to them for 8 weeks, please let us know the outcomes, but be sure to let us know how closely you maintained a healthy diet.
I forgot to mention you should also be taking a hi quality
vitamin C, at least 3 grams a day, and a hi quality B vitamin.
Try to take a real whole foods based vitamin since they are much better absorbed and used by the cells of your body. Research is clear about this. Mega Foods makes a good selection of vitamins that are real foods and so does Innate Response.
Cheers,
Martin
Take Care
Ali
I can so relate to what you are going through. I have fantasies of shaving my hair off so I can apply stuff on my skull.
I got shingles on May 4, 2013, and I will never forget it. I got it on my face, and it affected my right eye, and travelled along my trigeminal nerve to its root in the brainstem. The pain and suffering I have experienced has been awful.
The itching also kicked in, and made my nights a living hell.
In all this, I did find some relief. I strapped ice packs along my hairline, and that chilled the nerves running into my face enough to give me some precious minutes of ease. Once the ice pack warmed up, I would get up and replace it with the next one. I had six of them, stocked in the freezer...so I could get about 6 hours of sleep, in one hour increments as I awakened, scratching my face...and would go and get the next one.
Starting in September, I stopped using the ice packs and started using Tiger Balm Ultra on the painful and itchy areas of my face. This would give me immediate relief and would last as long as the menthol/camphor did (those two components evaporate out of the base, so you have to reapply a few times during the night).
This is what gives me the most benefit at present. Capsaicin and lidocaine did nothing for me.
I also take Gabapentin 300 mg twice a day. At one point, I had been taking 300 mg 5 x per day, but have gradually been staging down from that.
I recently also added a natural supplement to my regimen: PEA, sold as PeaPure, is a source of palmitoylethanolamide (PEA), and this fatty acid analogue is implicated in helping to manage neuropathic pain. I take four capsules a day of this, two in the morning and two at night. I also use a PEA-containing face cream that a friend brings over from Germany. The cream is called Dermasence Barriopro, but there is a version that you can buy on Amazon called Physiogel AI which also has PEA in it and can be obtained in the US. The PeaPure capsules can only be obtained from a pharmacist in San Diego, PJ Prescription Shoppe, (619) 223-5404. PEA takes awhile to work, so you will have to take it for weeks before you notice any benefit.
Lastly, I am about to try a new product called Gallixa that has been known to help some PHN sufferers. I will report on how that works. It can be obtained from www.gallixa.com, and there is a paper on the website from the inventor of the product where he discusses its benefit in PHN.
Hang in there! I hope some of what I shared here will help you.
Best -
Lisa