Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
It's stories like these that really get my grannies in a knot. My brother runs marathons (he has no health issues) and this will just add to his claim if you just lost weight and exercised you'd be better!
Well doi. I know that but how the blazes do you "exercise" when you've attempted to shower for the past four days and failed for various reasons including but not limited to not being able to get your sports bra off! And don't you dare tell me to just push through it! Arrrrrggggghhh! Arrrrrrgggggh! Give me my pirates patch because Arrrrrrgh!
Will anyone who reads this ever take note of the If you have a really well controlled disease and no history of deformity of feet, ankle, or knees, you could train? Ahhhhhh you think this platypus left foot of mine fits that bill? Sure does but will anyone talking to me notice that I have been in a darco boot for at least two years as orthotics just don't cut it and can't be made for "that" foot. Noooooooo.
But, but I read this article of someone who lost weight and now runs marathons. If you would just do that your RA would be fine.
To quote RA Warrior again, "If sloth did not cause my disease, exercise surely will not cure it"!
(insert deep cleansing breaths here - out with the bad - pause so I don't suck the bad back in - in with the good) Okay I think I am done ranting. ;-)
Somehow I think I missed the whole point of the article. Tends to happen when I get such a wedgie. Sorry folks!
It is wonderful to see a success story like this.
so re- thinking this ..sure hope some good things happen mixed in with the bad ..who knows.
I find it interesting that in her blog, Ms Murphy doesn't once mention her RA diagnosis. While she may be disappointed that more folks dx'ed with RA don't run, I'm a bit disappointed that she never addresses the topic of training with RA in her own blogs. I'd be very interested in how she integrates her condition into her training routine.
And yes, as others here have mentioned - if Celebrex and/or ibuprofen alone control her flares, then her disease is not as aggressive or as advanced as many of us experience. It's unfortunate that this point is not addressed in either the article or her blog. But I do wish her well, and her success story would be amazing with or without RA.
Sorry, Smith101, I didn't mean touch a sore spot! But I'm glad you highlighted a crucial caveat -- whether one's RA is/was well controlled or not. That's a huge factor. The article also says "let pain be your guide."
Murphy's been able to stop her daily meds (Celebrex), so I can't imagine that her RA is very severe.
But my point is still this - if she wants more folks with an RA dx to climb on board the marathoning wagon, she'd be well-served to reach out to us and address the topics of running through a flare (or not), pain, soreness, disfigurement, equipment, shoes, training, etc, to offer hope and success stories for folks with moderate to aggressive disease. Fingers crossed.
I find this article bizarre. It's also very misleading for the average person without RA. I found a blog where she does go into detail about running with her RA
http://www.thefitbee.com/2013_01_01_archive.html
She says "Living with my RA became a lot easier when I lost my weight. It limited my ability before I lost the weight because I let it."
What kind of statement is that?
This may sound mean, but I think she's kidding herself. She thinks her activity makes her less likely to have joint damage later, but I think she is setting herself up for big problems later.
I have relatively mild, very slow progressing RA - that's one reason it's taken 22 yrs for a rheumy to take me seriously - and Ibuprofen hasn't held me since 1993. Her experience should not be held out as a goal to others with RA - I think it's very rare.
And I've lost 35 lbs this year, and it hasn't helped my RA at all.
p.s. I used to run - now walking to the mailbox is a HUGE accomplishment!
I'm also on the list of people who get annoyed/enraged by these cheery little up-by-the-bootstraps articles. Of course, Advil!! Why didn't my doctor think of that?
I not only used to RUN, but I did lots of cardio and weight training, PLUS yoga and dance classes. Yeah, a real slacker I was (sarcasm alert). ; )
If anyone is a cheerleader for positive thinking, getting "centered," and spiritual health and all that jazz, it would be me - but I draw the line at implications that our thoughts or attitude cause or worsen our RA, etc. etc.
It's one thing to use the many, many psychological and mental tools at our disposal to DEAL with the issues/challenges with a chronic illness - but it's another thing altogether to wield said tools as a weapon against the sufferer.....