Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
I have been on the MTX since 1 Nov and the Humira since March. I take my Humira weekly. I am a nurse and deal with sick people regularly. I have yet to get an infection while on these meds. I thin k the key is frequent hand washing. However, everyone is different.
Good luck!~Lori
I am a firm believer in extra extra precautions are for those that can control their environment. I am not sure who these folks are. but i am sure they are out there. the rest of the folks are working with people with a pulse at work or have 37 grandchildren over and life just goes on. IF i can remember a mask somewhere it's a good day and I do it in some controlled aspects.
glad you are getting care
don't waste energy on being (too) scared - you need all that energy or its reserves to douse the disease.
welcome
Depot
I never wear a mask when I go out, but like Lori mentions, I do wash my hands a lot.
For me, the worst part about Humira (and Enbrel) is now much they hurt going in. I was given the 'pen'. I have heard the syringe is less painful. However, they did help so much, that it was more than worth it.
Good luck.
I was on Humira for barely a year because it just did nothing for me. I saw no difference in my RA and I would get injection site reactions. I would inject in my leg and afterwards leg would get all puffy and itchy and it drove me crazy! So, I went back to Enbrel.
I also have never worn a mask. I've been working in a preschool the past year and I'm exposed to so many germs every day. I wash my hands A LOT and that seems to be enough.
I, too, wash my hands frequently and tend to stay away from crowded places, especially in Winter. I also steer clear of people with influenza or colds, when possible, as the haematologist advised against the 'flu innoculation for me.
These drugs are scary but do help to control RA.
Good luck
PS-I haven't found the pen painful at all.
It worked well for about 18 months but has slowly stopped working for me so I am switching to Enbrel.
I do have "down days" occasionally after an injection (I inject and take MTX on Fridays so I have a weekend to deal with any side effects). Sometimes I have bad sugar cravings after the meds for a day or two and I give in to them.
I also had some hair loss (I have a lot of hair though) to the point my hairdresser noticed it, but that stopped after about 4-5 months.
Since being on these meds I am very careful about exposure to others. I do not hug people in social situations (which has been met with some very negative reaction from others) and I am careful to wash or sanitize my hands often (especially after the grocery store - ugh). I always get upper respiratory illness when I fly so I will wear a mask if I have to travel by plane any time in the future.
I also eat very healthy 90% of the time and I think that helps me stay healthy. I have not had a cold or flu in the past 2 years.
Good luck to you. Just stay up on your blood work and watch out for anything out of the ordinary. You know your body best so honor what it tells you.