Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
I also have MANY gorgeous shoes I can no longer wear and are currently gathering dust in my closet. For some reason, that bums me out more than the constant pain and saying, oh, sorry, no, I can't do that today -- my knees won't let me.
Lavagirlie, I'm not trying to bum you out, too; just want you to know there's someone out there that feels the same way you do and we're in this together. Hopefully there truly is a light at the end of the tunnel for us.
Such a shame. Could be worse.
You know it's hard not knowing. It's hard functioning in pain. It's really hard waiting to see if a med or treatment will work. Stay on your doctor. Gets closer to that 3 months & your worse tell her you simply don't think it's working. I was so bad in those first several months of my diagnosis I did as instructed but also let my doctor know It was getting to be to much. Took pictures of any swelling. I don't swell all the time. Even with a lot if pain. My doctor responds better when she can see it.
There are those people who have "remission" or periods of no or low pain. I don't think it's common but does happen.
I think we all know what your going through & understand how you feel.
If that pain starts to control your life ask for something to help maintain.
Not sure if your on an anti inflammatory but if not it's worth a shot.
Most take Prednisone while trying to find that right treatment. Although there are other options.
Prednisone the double edge sword, helps the pain but nasty side effects.
It's hard at times to stay hopeful but you never know.
I wish you the very best of luck.
Sammy
Granted the majority of those that I know personally who have had remissions lasting 1-20 years - have done so with diet or AP. I've read about some people on here going into remission on the aggressive treatments as well. Each patient ends up following their own path - just as each patient has to accept the potential side effects of their chosen treatments.
So do not lose hope. Remission can happen - even in advanced cases (like my mother's)
I was told to get more supportive shoes because I had a bout of plantar fasciatis (sp).
if you have less pain rather than more pain as opposed to no pain that's a win also. it's ok to miss the shoes. buy bucks worth of nail polish and pay for the pedicure. :)
hope the first biologic is the charm.
hugs
Depot
About those heels that you love to wear.....obviously you look good in them or you wouldn't care. Well, I looked much bigger and more macho at 205 than at 165 (was still trim) but that is just gone and never to return. I'll take less pain even if i get less flirtations. Also, wearing high heels for long periods (years) could cause you to have to have the bones in your feet broken and reset later on in life and as to have read from 51percent surgery and RA are not a good combination.
Life is now new for you girlie. Adjust and be persistent and you'll still have tremendous joy ....if you don't then you won't. It's that simple of a choice for you (if your lucky). Good luck.
What do you really want in your life? Think about it, and work diligently to chart a course that gives you that. Be a nuisance with doctors. Get your way.