Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Hey folks...I took my second 10mg weekly dose mf MTX last Thursday. Friday I was fatigued, Saturday was nauseous and throwing up and uncomfortable but but could still play in the church band, Sunday was blah but played to a crowd of about 1,000 at the outdoors festival where my church was having its service, but pretty nauseous all day - and I threw up the fair food I ate after church. It was hard not to eat crappy stuff since in the middle of the sermon the Mini Donuts truck fired up.
Monday comes and I am nauseous and throwing up anything I eat. Tuesday comes (today) and still the same. It doesn't appear to matter what I eat, but my body is craving salty foods. I am drinking (today) vitamin water mixed with seltzer water to get some electrolytes in me. But this is ridiculous.
Anyone ever experience this? I am taking my Folic Acid exactly as prescribed. I take my MTX at night in the hopes of avoiding most of the side effects. I am at a loss...and I guess if I didn't feel so gross all the time, the not eating part would be fine because I could survive several hard winters with the weight I have on me. But I would prefer to be able to go to work instead of dealing with this. Maybe that's just not realistic for me during the first few weeks.
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I've been on high dose prednisone for pneumonia, and now I am slowly weaning. But lots of symptoms I don't like having, plus overeating has put at least 10 lbs on me. The food is "loud" as the GLP-1 users refer to it.Also pressured speech. Which comes out in my posts. Sorry I posted so much. I just need an outlet for my agitated and irritable brain. Just scroll on by my posts, if they are too...
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I haven't been around in a long time. I am admin in a private group, and I would like to upgrade someone else to that position. I thought I knew how to do that, but the prompt has gone missing. Or is it not allowed to upgrade someone else to admin? I just find "ban and demote" under "Edit." I don't get notifications to DS anymore, but I wil come back in a few days to find out the answer. There...
I eliminated a few meds too quickly in retrospect. It's a long life, and other than Actemra, I would do a do-over for longer with a few of them. There are only so many meds for RA, and if you jump through them all, because if small things, you will find that they burn out or become less effective over time.
That will leave you in my situation, with nothing left to try, if Orencia fails, 17 years into treatment.