Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Today we had a church lunch and I brought a crock pot of soup. I had a lot of trouble carrying it. It wasn't fatigue, exactly, I just felt weak. Like it was too heavy. I usually carry 4 times that much just going to work every day. I've noticed this happens fairly frequently. Like I can have a normal work day, get home, and then I just can't lift my bags or move something from the counter. My hands always hurt, every day, that didnt help. But it wasn't even that.
The other thing that happens is I'll be having a "normal" day, meaning not flaring, and then I hit a wall....just can't take another activity, conversation, phone call, request from my kids, etc. I'm afraid it is my kids who get the brunt of my short temper at that time. That bothers me too. I get grumpy and impatient. It isn't their faults, but I don't know when the wall is coming, I just slam right into it.
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I've been on high dose prednisone for pneumonia, and now I am slowly weaning. But lots of symptoms I don't like having, plus overeating has put at least 10 lbs on me. The food is "loud" as the GLP-1 users refer to it.Also pressured speech. Which comes out in my posts. Sorry I posted so much. I just need an outlet for my agitated and irritable brain. Just scroll on by my posts, if they are too...
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I haven't been around in a long time. I am admin in a private group, and I would like to upgrade someone else to that position. I thought I knew how to do that, but the prompt has gone missing. Or is it not allowed to upgrade someone else to admin? I just find "ban and demote" under "Edit." I don't get notifications to DS anymore, but I wil come back in a few days to find out the answer. There...
Fatigue is a big part of RA. fatigue makes you cranky when you don't get sufficient sleep and rest. Don't try to be superwoman. Recognize and accept - nay, embrace - your limitations!! You and everyone around you will be happier. For me sleep is crucial...moreso than diet or weather! I need 9-10 hours a night!
After much encouragement from this board, I decided to make an earlier appt with the rheumatologist. I've been playing phone tag and got a message in the client portal online. When I went to look on it, I notice the dx they have for me is "arthralgia, unspecified joint."
I dx people in mental health, so I understand the dx process, it is based on coding in a pre-categorized list of billing options. But I gotta say, when I can't make a fist or snap my fingers, when I feel like I need a walker to get out of the tub at 44 years old, when I can't carry a crock pot to church, when I have to tell my kids not to "hurt me" when they hug me, "arthralgia, unspecified joint" feels like a kick in the teeth!
Just wondered how you are and if you got an earlier appointment?