Rheumatoid Arthritis Support Group

Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...

2,179 Members

16,355 Posts

0 Online

Kimberley97 06/01/2013

So much for my super great attitude earlier this week. I find myself saying "why me" now. I tried to go to a festival tonight , my daughter was a volunteer and I had to go. But my hips seized up I was crippled I gimped back to the car barley. I'm so frustrated be cuz it completely stops me when it's in my hips and there is nothing that can be done. The enbrel does seem to be helping body wide but not hips the worst part is we have a fab trip planned late June to go out west Montana. And glacier and I never know when to expect crippling pain I could start a walk and get stuck. I hate to miss all the fun my husband and daughter will take hikes and I will have to wait in the stupid visitors centers. I'm so mad. Sorry everyone hope I don't disappoint you all with my "why me " rant.

deleted_user 06/02/2013

I know just how you feel. I finally made up my mind and got my walker, cause I couldn't walk that far. Using a cane was out of the question when I was out!! Funny thing about it I don't hardly use it (not unless I have a flare up) in my apartment. I got to the place I try not to dwell on my condition.....just thank God that I can do what I can. I had this RA since "94" or "95". I usually just pray ask God to help me. You just feeling bad right now. Tomorrow maybe a better day for you. Don't worry. Take care.

deleted_user 06/02/2013

Kimberly, we all understand your frustration and we're glad you can vent here where it WILL be understood! It's so hard on people who are still raising their kids and have to deal with this. I am older than you but my grown son is Autistic and mentally challenged, so at 57 years old--I'm still dealing with after school activities, etc. I try to make sure my son has an active life, but between the RA, a disabling case of Meniere's Disease, and a full time job---I do good to make it through a day. So, I can certainly relate to how you feel. It just isn't fair and sometimes we just need to say so! I'm so sorry that you have such a hard time. Praying that you can get better and enjoy your trip with your family.

deleted_user 06/04/2013

Kimberley97=OSASHM (One Strong A** Super Hot Momma)

I completely love how optimistic you are in this fight! You are a very strong woman. You have certainly brightened my day many times.

A pessimist sees the difficulty in every opportunity; an optimist sees the opportunity in every difficulty.

However, we are only human and it would be nice to feel like one from time to time. LMAO So, you are very much entitled to vent and are in great company to do so.

I will add mine for the day... I was sitting in my car trying to get up enough umpff to get out when these pair of really cutsie doublemint twin soccer moms walk by complaining about how far they have to walk across the field to get to the bleachers in their heels. REALLY... I daydreamed for a sec about cutting their pretty blonde hair off, tape it to their chests and breaking the heels off of their shoes. Bring some tennis shoes if you know you are going to the field! Just sayin :)

In adding this Comment, I sreed80, do promise to be nice. Or maybe not??? LMAO

Kimberley97 06/04/2013

You guys make me feel so understood thanx.

deleted_user 06/04/2013

sreed - "doublemint twin soccer moms" - bwwaa ha ha ha ha!!! I almost spit my coffee out at that one! We've got those here as well. They are a native species in my neck of the woods....

Kimberley - sending you gentle hugs for a MUCH better day...

camba 06/04/2013

This is quite an old post and you will nearly be off. Hope you didnt pull out of it. Just one extra thing I do on long trips is wear airline socks - the support tights might be even better. I do this even in warm weather where air conditioning may be non existent.

I do a lot of nine hour bus trips and even though there are stops so not necessary like on a plane for clot reasons I now think it helps with RA.

Like the heat pad idea too even if it is summer.

And I am getting almost superstitious about vitamins and nutrition! Also for me breaks away seem to help cycle of feeling sorry for myself for having this condition.

So hope you are still going and have a great time.

Join the Conversation