Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Hey everyone. I'm still on my initial 3 month trial of Plaquenil to see if it is going to work before he he decides if I have to take Methotrexate. My 3 months will be up March 6th, I see him again in April. The thing is though, I'm hurting more every day, in new spots, new ways, and it is almost constant. My feet hurt to walk on them and I have to change shoes each day because they can't touch in the same spot as the previous pair. My back and neck just ache and I can't get comfortable. I know, I know...... I'm not telling you anything you haven't experienced, right? What do I do in the meantime? If it was you, would you try to get a steroid shot from your PCP, or what? My heating pad and TENS unit only do so much, Ibuprofen does nothing, and unfortunately I can't cover every ache at once. LOL. Sorry, gotta try to laugh, right? I'm just seeking opinions......thanks
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I've been on high dose prednisone for pneumonia, and now I am slowly weaning. But lots of symptoms I don't like having, plus overeating has put at least 10 lbs on me. The food is "loud" as the GLP-1 users refer to it.Also pressured speech. Which comes out in my posts. Sorry I posted so much. I just need an outlet for my agitated and irritable brain. Just scroll on by my posts, if they are too...
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I haven't been around in a long time. I am admin in a private group, and I would like to upgrade someone else to that position. I thought I knew how to do that, but the prompt has gone missing. Or is it not allowed to upgrade someone else to admin? I just find "ban and demote" under "Edit." I don't get notifications to DS anymore, but I wil come back in a few days to find out the answer. There...
Pain meds and alternative things are fine if they work. But even if you did feel better, they are not stopping the progression of the disease. Be very firm, complain loudly and show your doctor all the flares. You don't want any deformities, so tell him it is time to move on.
And let us know how it goes!
for working and day time pain when first diagnosed I used ankle wraps and slide on shoes (the shoes used to be off under the desk - paper pusher :) - and I used a lot of nsaids.
yeah I did have a few joints drained around early diagnosis (especially the knees) and have had a fair amout of steroid shorts the past 10 years but not so many in my early diagnosis part.
some rheumatologists prescribe prednisone as a poor man's diagnosis in the early first months of diagnosis - maybe if you could ask a question about emergency "bridging only" pain relief on the patiet portal (if you rheumatoogist has an online patient portal)?
i purchased a couple of books on RA after checking them out from my local library where I studied up on disease modifying anti rheumatic drugs when first diagnosed. looks like you are at month 2. perhaps also you could get a cancellation from the rheum's office and get in earlier rather than you regularly scheduled which would be at 4 months in april no?
going on function, how are you doing on the job at work? or with the kids? or driving or walking?
every insurance company in the united states is different but some have some standard operating procedures for prescription of one or two dmard's at first. Some rheumatologists like to do imaging, their decision, and your rheumatologist might bring this up, to further refine diagnosis.
as to office visits,, It's 3 to 5 times a year now at the rheumatologist from now to forever for most folks with this diagnosis. Start setting up your questions for the next in office appointment.
get that book at the library so you can know more about methotrexate than your rheumtologist and you can have your questions lined up :)
I am sorry you are hurting
depot
I would give the medication a shot, the worst thing that will happen is that it wont work. I found that tracking my good and bad days helping me understand.
I just relapsed after about 3 months on Plaquenil and it was an over night difference. When I was on the Plaquenil I had some bad days, but when the medication doesn't work (for me anyway) I couldn't function. I couldn't go to school, I felt like I could not even get out of bed. Like my joints had cement in them. That was a totally different feeling than before, but I never would have known that without sticking with the Plaquenil even through bad days. good luck!
As MTX worked for me. My doc gave me a script for prednisone for the days when I am hurting really bad.