Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Finally in 2008, the swelling in my lower extremities became so severe I couldnt walk. It took another 8months for someone to finally give a damn and test me. I knew it was RA and asked for the tests. My numbers were the highest 3 drs had ever seen. The rest is history.
Take care,
Emerald
I was diagnosed when I was 44. I'm 46 now. Started very unknowlingly on a trip to Vegas. I thought I got one of those "kinks" in the neck from too long of a drive. Nope....The next week, major shoulder pain, was misdiagnosed with bursitis....nope! Then both heels started to hurt as if I spent the day previous jumping off brick wall like when I was a kid but thought it was my shoes....nope! Then my wedding ring was a "pain" to remove. Anyway you guys get the picture. It was RA!!
Saw my PC & requested blood test. He even stated, "Your demographic isn't very likely to be RA. I love my PC but even after the labwork he didn't recognize it & I STILL requested to see a Rheumy because I've my own self diagnosis from researching on the internet.
Ta daaaaa! The Rheumy saw it right away. Well, after 2yrs of some aggressive MTX treatment, eating better, working out. I saw my Rheumy 6 months ago & reduced my MTX to only 1 pill 2.5mg per week. Then saw him ago 4mos ago & we stopped all RA med's.
So far, so good. He feels I'm in remission!
Jen
After several bouts with iritis and at the suggestion of my eye doctor the rheumy ordered another round of tests and ANA was 1280. At that time they suspected Lupus since my mother died of RA and Lupus.
I wasn't diagnosed with RA until my primary care physician ordered the CCP (?) and it came back 199. So it has been a frustrating and painful merry go round.
I am still in the process of finding something that helps stop/slow down the flares and fatigue. Have been on Humira for 5 months now without any noticeable difference.
Although tracked symptoms at least 2 years prior.
My sister was 19.
My heart goes out to everyone but especially the younger & those with children. God bless you all.
Sammy
I'm 52 and started meds 6yrs ago. 2yrs before that is when I first saw my Rhemi to complain. She put in my chart, if this is RA, then patient will be back. I'm sero neg.
Sorry, got carried away. You only asked for ages haha
It was another year before I started getting random 24 hour flares, diagnosed with Palindromic Arthritis. It was supposed to get better, instead it got much worse. It took 4 doctors to finally get a firm RA diagnosis which is why I am confused about how long I have had this disease.
I was under treated for 7 years, got bad feet deformities. Then finally on a good biologic/DMARD combo, which lasted 5 wonderful years. I've had some good and bad experiments with drugs, right now, pretty bad to hopeless.
I was 44 when I got really sick. My daughter was 10, but my boys were grown and moved out of the house, more or less - playing Junior hockey for two of them. My daughter has always been a great help and supporter, but it was really hard on her having to be my caregiver. Although she did go into social work - she learned to be caring and compassionate during those years. Hubby has that job now, and he is doing a good job, these days. I don't know what I would do without him.
Caren